Youth participatory action research (YPAR) is a methodology to engage youth in the research process and is focused on emancipation and empowerment. Although benefits have been outlined, ethical issues have also arisen. This article provides a narrative review of peer-reviewed literature regarding these ethical issues. After applying standardized search criteria and inclusion/exclusion criteria, 26 articles remained. Examination of the literature revealed seven categories of ethical issues: level of participation, power, consent, risk/benefit ratio, confidentiality and anonymity, remuneration and empowerment. To mitigate these issues, recommendations are provided, including: being explicit about, and inclusive of, youths’ participation; critically reflect upon the researcher as ‘expert’; consent as an ongoing process and based on capacity rather than biological age; balancing the need to protect youth with the benefits of participation; challenge blanket anonymity policies to maximize participation and empowerment; remuneration beyond monetary compensation; and incorporate concepts of empowerment into research design and process.
This qualitative study aims to explore how individuals who are seeking help and support for eating disorders use various forms of technology. Fifteen participants, recruited from an Eating Disorder Program in a hospital setting and an eating disorder community support centre, voluntarily participated in focus groups and individual interviews in 2015. The authors used thematic analysis to code and analyse the qualitative data, and three themes were identified: safety, connection and technology development. This study identifies the need for technology use to be addressed and integrated into clinical services for eating disorders, as well as for safe and helpful technology tools to be developed for this population.
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