Needs of parents with children with scoliosis are complex and depend on their child’s treatments. The purpose of this study was to identify needs of parents with children with scoliosis. This qualitative description involved interviews with parents of children at various stages of treatment. A convenience, then purposeful sample of 16 parents (12 mothers, two fathers, and two stepfathers) was interviewed; interviews were transcribed and analyzed using thematic analysis. Parents’ needs included: Needing reliable medical information; Desiring information on complementary treatments; Wanting help in supporting and advocating for their child; Needing to protect the child and family; and Seeking connection and support. Although many parents’ needs are being met, this study recommends a nursing role aimed at providing parents with reliable medical information, discussing alternative treatments, assisting parents in their role of supporting their child, helping parents in their advocacy efforts, and referring parents to appropriate connections.
IntroductionEach year NIST interacts with a variety of academic institutions, private businesses and government entities in the pursuit of its mission to promote U.S. innovation and competitiveness 1 . Information about the number of interactions among NIST and its partners and customers is important in understanding the breadth and impact of NIST laboratories, measurements, and services across the U.S. economy. Examining the types of interactions, including grants, awards, research agreements, technical services, education and purchased products between NIST and its partners can demonstrate the true size of NIST's footprint.NIST works directly with private businesses, academic institutions and government entities in a variety of ways; therefore, there are many avenues through which NIST can impact actors in the U.S. economy. The total number of annual interactions and the extent to which these interactions are dispersed geographically was previously unknown. In this study, we provide the annual number of NIST's interactions in several categories and the country-wide, geographical distribution of NIST's customers and partners, demonstrating the extent of NIST's reach in the U.S. economy.
Key Findings• NIST interacted more than 300,000 times with domestic institutions from fiscal year 2010 through fiscal year 2014.• NIST involved itself directly in 68,478 interactions on average each year throughout the United States.• NIST connected with 6,731 unique, domestic institutions on average each year.
In Science—The Endless Frontier, Vannevar Bush wrote that reaping the potential
benefits of science conducted at federal laboratories requires the discoveries made in
the laboratories be transferred to society. In federal laboratories, Offices of Research
and Technology Applications (ORTAs) are tasked with transferring laboratory-developed
technologies to the market, allowing society to reap the benefits provided by scientific
investments. In fiscal year 2016, the Technology Partnerships Office of the National
Institute of Standards and Technology (NIST) conducted a first-of-its-kind survey of the
ORTAs of more than 50 federal laboratories to obtain information on their organization
and operation. We present descriptive analyses of the responses to this survey in two
topical areas: organizational characteristics and technology transfer characteristics.
We disaggregated the data across the dimension of budget size to describe similarities
and differences in responses across the budget categories. Among the relationships we
observed, we found that ORTAs with larger technology transfer budgets report higher
frequencies of conducting internal technology transfer activities, such as patent
prosecution (e.g., drafting patents, filing patent applications, and responding to
actions from the patent office) and market analysis. Additionally, we provide context to
the data by summarizing the relevant research on ORTAs at universities, and we present
potential inferences that may be drawn from that body of research and applied to the
data on ORTAs at federal laboratories.
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