The International Family Quality of Life Project, begun in 1997, involves the collaboration of a team of researchers from Australia, Canada, Israel, and the United States whose aim was to conceptualize “family quality of life” and develop a survey tool. The authors describe the basis for the conceptualization and explain the survey development process. An initial version of the survey (the Family Quality of Life Survey—FQoLS‐2000) was used to collect FQoL data across several countries in the early 2000s. The experiences of survey respondents and administrators and subsequent data analysis suggested modifications that resulted in an updated version—the FQoLS‐2006. This new version focuses on 9 areas of family life: health, finances, family relationships, support from other people, support from disability‐related services, influence of values, careers and planning for careers, leisure and recreation, and community interaction. The authors explore each of these areas in relation to 6 underlying concepts: importance, opportunities, initiative, attainment, stability, and satisfaction. Other sections entail obtaining information on the family make‐up, family member, or members, with intellectual disability, and an overall summary of FQoL. The authors note that information from the FQoLS‐2006 should be useful for a wide variety of purposes related to providing supports to individuals and families.
The findings strengthen the importance of examining both the overall perception of FQOL as well as the perceptions in individual life domains. Moreover, they highlight the need to examine each life domain according to its various dimensions. In sum, the results call for further examination of the FQOLS-2006 as a useful tool for assessing FQOL and for implementing services based on it.
The conceptual model of the FQOLS-2006 was supported with some qualifications. Each domain on the survey can be reliably measured by four dimensions Opportunities, Initiative, Attainment and Satisfaction. The dimensions of Importance and Stability, however, did not fit. Data reported on these dimensions from past and current studies should be interpreted with caution. The construct of FQoL is also reliably measured by the domains of the FQOLS-2006. Further research into the psychometric properties of the survey, particularly from a cross-cultural perspective, is needed.
The effect of out‐of‐home residential placement on families has been previously studied. However, no study has examined this issue through the lens of “family quality of life” (FQoL). The aim of this study was to produce a picture of FQoL among families with a member with an intellectual disability (ID) who has multiple diagnoses (i.e., an additional condition such as a behavioral or emotional disturbance). FQoL before and after residential placement was examined. Sixteen family carers with family members with an ID participated in an in‐depth interview focusing on five areas of FQoL: stress, coping, emotional impact, family relationships, and overall FQoL. The authors found that most families reported positive emotional changes after the placement occurred, except for lingering guilt and worry. In addition, after placement, families experienced more freedom, enhanced FQoL, and an improvement in familial relationships. Coping mechanisms, including problem‐focused and emotion‐focused coping, as well as external support resources, were utilized before and after placement. These findings suggest that an out‐of‐home residential placement of a family member with an ID both positively and negatively impacts the entire family. The authors propose a number of support recommendations that might serve to enhance the QoL of the individual with a disability, specific family members, and the family as a whole.
Research suggests that individuals with developmental disabilities and challenging behaviors resulting from complex impairments tend to experience poor health status linked to lifestyle factors (including inadequate diet and poor nutrition). Individuals living in group home settings seem to be especially vulnerable, as they may often be provided with meals that may not be nutritionally adequate. This article describes how the need for a nutritional intervention program for group home staff was determined, the nature of the program itself, and the impact of the program upon meal composition and on staff and residents. Subjects were supervisors and group home staff members responsible for providing meals in four group homes to 21 residents. The program consisted of two training sessions for staff and follow‐up monitoring through daily photographing of meals, weekly communications with staff, and monthly measuring of the body mass of group home residents. The program was assessed through a time series evaluation of photograph ratings measuring meal composition. Results indicated that meal nutrition and composition improved significantly over the duration of the nutrition intervention program. The authors conclude that a meal enhancement model may be effective in improving meal nutritional compositions in group home and other community‐based settings, thus providing opportunities for improved health status.
Human resources development programmes should be based on the same core quality of life principles and domains that guide service delivery on the individual level.
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