Date Presented 03/27/20
This study is a longitudinal, randomized clinical trial exploring the benefits of two wheelchair-mounted dynamic arm supports (KINOVA O540 and JAECO WREX) in nonambulatory individuals with DMD experiencing upper-extremity weakness. Data collected will provide information about upper-extremity movement patterns and performance, as well as participant-reported outcomes regarding function, goal attainment, independence, quality of life, and user satisfaction.
Primary Author and Speaker: Danielle Hall
Contributing Authors: Natalie Silverman, Michelle Beck, Margaret Feltman, Amy Hartman, Roxanna Bendixen
Date Presented 03/28/20
Our longitudinal study is exploring the feasibility and reliability of using actigraphy as a meaningful outcome measure in children ages four through seven involved in a clinical trial. Our data examine activity levels and sleep patterns in boys with DMD in their natural environment throughout the drug trial. We hypothesize that using activity monitoring as an outcome measure will provide a meaningful view of daytime and nighttime activity for these young boys to show treatment effect.
Primary Author and Speaker: Natalie Silverman
Contributing Authors: Michelle Beck, Danielle Hall, Amy Hartman, Roxanna Bendixen
Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations.
This research presentation provides information on daytime and nighttime activity of boys with DMD in their everyday lives and while enrolled in a 12-month clinical trial. This research addresses the gap in knowledge regarding community-based outcomes in DMD, such as daily activity and sleep, and how therapeutic interventions may affect these outcomes.
Primary Author and Speaker: Roxanna Bendixen
Additional Authors and Speakers: Sarah McKendry, Natalie Silverman
Contributing Authors: Amy Gore Hartman
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