Objectives: To explore acceptability, tolerability, and subjective experience of virtual reality (VR) as therapeutic recreation for hospice patients living with dementia (hPLWD). Design: Descriptive study setting. Community Hospice Agency Participants: A convenience sample of n = 25 hPLWD cared for by a local hospice agency. Intervention: Participants viewed a beach scene using VR headset for ≤30 minutes. Measurements: Tolerability was measured with Pain Assessment IN Advanced Dementia (PAINAD)scores at baseline, every 5 minutes during VR use, and 5 minutes after headset removal. Additionally, follow-up phone calls to caregivers several hours after the intervention were performed to inquire regarding any noted adverse effect after the intervention. The subjective experience was measured with qualitative semistructured interviews with the hPLWD regarding enjoyment for the VR. Descriptive statistics were performed on all collected data. Results: The VR was stopped early in 2 of the participants due to a ≥2-point increase in PAINAD score. Baseline behavioral and psychological symptoms of dementia (BPSD) were reported to have worsened in 2 (8%) of the participants at follow-up. There was no significant difference between dementia type and usage time or dementia severity and usage time. Of the 25 participants, 14 (56%) reported enjoying VR and 12 (48%) would do it again. Conclusion: Virtual reality use was generally safe and enjoyable in hPLWD. Virtual reality can provide meaningful activity and enhance quality of life for hPLWD at the end of life. In the future, VR may be a useful intervention for BPSD in hPLWD.
Veterans who are caregiving for others (VCOs) despite being younger, have similar amounts of chronic health problems and more modifiable health factors (i.e., smoking) than veterans who are not caregiving for others (VNCOs). These characteristics have important implications for health management of veterans who are caregivers.
Introduction
Informal caregiving is an essential element of health‐care delivery. Little data describes how caregivers structure care recipients’ lives and impact their functional status.
Methods
We performed observational studies of community dwelling persons with dementia (PWD) to measure functional status by simultaneous assessment of physical activity (PA) and lifespace (LS). We present data from two caregiver/care‐recipient dyads representing higher and average degrees of caregiver involvement.
Results
We acquired >42,800 (subject 1); >41,300 (subject 2) PA data points and >154,500 (subject 1); >119,700 (subject 2) LS data points over 15 months of near continuous observation. PA and LS patterns provided insights into the caregiver's role in structuring the PWD's day‐to‐day function and change in function over time.
Discussion
We show that device‐enabled functional monitoring (FM) can successfully gather and display data at resolutions required for dementia care studies. Objective quantification of individual caregiver/care‐recipient dyads provides opportunities to implement patient‐centered care.
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