Although emotional factors are important to the adjustment of using IC methods for bladder management, the majority of people with SB and their caregivers seem to report no major emotional difficulties with this process. Yet a considerable group of participants did report such emotional difficulties associated with fear and shame. Knowing more about the factors associated with such negative feelings can facilitate interactions, provide mutual aid, and assist with resolution of practical concerns related to intermittent bladder catheterization.

The identification of predictive factors for ISC improved our understanding of ISC in SB patients and should aid in the development of more effective strategies to increase ISC use.

Objective: to evaluate the use of an online forum for people with myelomeningocele and their families and the profile of the users, based on intermittent catheterization. Method: a quantitative, cross-sectional, descriptive and exploratory study. Data was collected from users of the online forum, based on an online questionnaire available from March 20 to April 20, 2015. Sample consisted of 30 users. Descriptive statistical data analyses and chi-square test were performed. Results: among users, 27% were people with myelomeningocele and 73% were family members. Age, considering the total sample, ranged from 22 to 58 years old. Women represented 67% of the sample. Most users considered the language used in the forum understandable, and also thought the forum had a proper layout and was easy to navigate. It was noted that the mother and the person with myelomeningocele are the main responsible people for intermittent catheterization; 86% use a simple plastic catheter and 14% use a hydrophilic catheter; 81% do not reuse the catheter, 10% use the same catheter for one day and 9% for up to one week. The main place chosen to perform intermittent catheterization was the bed, followed by the toilet and wheelchairs. Conclusion: the use of the online forum was well evaluated by the users. It can be considered a means to obtain information, create a support network and clarify any doubts, empowering users and contributing to adherence to intermittent catheterization, which is one of the treatments for neurogenic bladder.

Introdução: A Espinha Bífida (EB) é a mais frequente malformação congênita no mundo, sendo responsável por importantes sequelas neurológicas, compatível com a vida. Diante disso, faz-se necessário identificar e desenvolver tecnologias educacionais, que auxiliem na capacitação e no apoio a indivíduos com EB e seus familiares. Nessa direção, foi desenvolvido um fórum virtual para indivíduos com EB e seus familiares, o MieloFórum. Objetivo: A proposta deste estudo é avaliar os acessos, a acessibilidade dos seus usuários e garantir uma certificação de qualidade ao mesmo. Método: Para a análise de erros de HTML foram coletados os erros de acessos do MieloFórum, analisado os acessos e submetido a uma certificação de qualidade. Resultados e discussões: o fórum foi desenvolvido e avaliado, sendo encontrado o total de 28 problemas no código do fórum, levando em consideração as regras de padronização do World Wide Web Consortium mostrou-se abrangente em acessos no período analisado e submetido a certificação de qualidade. Foram mais de 1500 acessos em 7 meses com uma demanda em diversos países. Conclusão: A submissão do MieloFórum em uma ferramenta de análise da acessibilidade mostrou-se útil para o julgamento e a correção dos problemas identificados, potencializando-o juntamente com a certificação de qualidade. Descritores: Reabilitação,Acesso aos Serviços de Saúde, Fórum de Saúde.

Among patients with spina bifida and neurogenic bladder dysfunction, acquisition of urinary continence after initiating IC was influenced by the use of self-catheterization and daily frequency of IC.

No abstract