This study explored the preliminary experiences of parents upon learning of their child's diagnosis of Down syndrome. Qualitative data from a web-based, national survey were analyzed based on two groups: prenatal (n 5 46) or postnatal (n 5 115) diagnosis. Three primary categories emerged from the data analysis: prenatal screening/testing decisions by parents, the adjustment process for parents, and postdiagnosis resources and support for parents. Participants' rationale behind pursuing testing ranged from wanting to be better prepared to not pursuing testing because it was not a factor in continuing the pregnancy. Participant reactions to the diagnosis involved a range of intense preliminary emotions; participants described their extreme grief and loss experience at the initial news of the diagnosis, which also was ambiguous in nature and required differing timelines of adjustment. Finally, participants described experiences with medical professionals, information/ education, and faith/religion as resources and areas of support, although not all were described as positive in nature. Participants in both groups identified having negative experiences with medical professionals during the diagnosis process. The results indicated the importance of these early experiences for parents of children with Down syndrome and emphasize providing effective education, resources, and practical information from reliable sources.

The present study explored the experiences of parents of children with Down syndrome at different phases of the life span. Using a mixed-method design, the current study included 445 participants who were divided into 4 groups based on the age of the child: (a) parents of children under 5 years of age (early childhood), (b) parents of children between 5 and 11 years of age (middle childhood), (c) parents of children between 12 and 18 years of age (adolescence), and (d) parents of children over the age of 18 (chronological adults). Parents reported higher coping strategy scores during the middle childhood and adolescent

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