Background The Health and Wellbeing Surveillance System (HWSS) monitors the health status of the WA population. Its reliance on a landline sample frame and Computer Assisted Telephone Interview (CATI) must shift to mobile phone sample frames and novel online completion options, improving the representativeness of the HWSS data to the WA population. Methods Concurrent surveys in 2020 were run using three sample frames, the 2013 Electronic White Pages (EWP), the WA Electoral Roll (WAER) and a Sensis consumer database. The survey modes explored included CATI, online, and dual mode. Responses were weighted to the WA population. Response rates were compared between frames and modes. Differences in demographics, health risk factors, conditions and behaviours were investigated by comparing prevalence estimates and logistic regression modelling. Results Response rates were 20% for EWP CATI, 41% for Sensis CATI, 16% for Sensis online, and 10% for WAER online. Compared to EWP, the WAER and Sensis frame respondents were younger, had higher incomes and better education. Online respondents had higher prevalence of high psychological distress and lower prevalence of smoking compared with CATI. Conclusions The WAER and Sensis consumer database are valid sample frame options for the future of the HWSS. CATI gave the highest response rates, yet respondent differences by frame and mode were evident. WA Health is further exploring these options of modern sample frames and survey modes in 2021. Key messages Population health surveillance systems must modernise their sample frames and data collection modes to continue to provide reliable health prevalence estimates.
The Population Health Research Network (PHRN) is an Australian national data linkage infrastructure that links a wide range of health and human services data in privacy-preserving ways. The data linkage infrastructure enables researchers to apply for access to routinely collected, linked, administrative data from the six states and two territories which make up the Commonwealth of Australia, as well as data collected by the Australian Government. The PHRN is a distributed network where data is collected and managed at the respective jurisdictional and/or cross-jurisdictional levels. As a result, access to linked data from multiple jurisdictions requires complex approval processes. This paper describes Australia's approach to enabling access to linked data from multiple jurisdictions. It covers the identification of, and agreement to, a minimum set of data items to be included in a unified national application form, the development and implementation of a national online application system and the harmonisation of business processes for cross-jurisdictional research projects. Utilisation of the online application system and the ongoing challenges of data linkage across jurisdictions are discussed. Changes to the data custodian and ethics committee approval criteria were out of scope for this project.
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