When societies went into the COVID-19 lockdown, the conditions under which people with diabetes managed their illness dramatically changed. The present study explores experiences of everyday life during the COVID-19 lockdown among people with diabetes, and how diabetes self-management routines were affected. The data consist of 20 interviews with adults with diabetes, focusing on experiences during the COVID-19 lockdown. The analysis showed that experiences of self-management during lockdown were diverse and that participants handled daily life changes in very different ways. The main changes in self-management related to physical activity and food intake, which decreased and increased, respectively, for many participants during lockdown. We found two main and significantly different overall experiences of everyday life while on lockdown: (1) A daily life significantly changed by the lockdown, causing disruption of diabetes self-management routines, and (2) a largely unaffected everyday life, enabling continuance of diabetes routines. Our findings showed that people with diabetes lacked information about strategies to self-manage diabetes during lockdown and would have benefited from guidance and support throughout the pandemic, or any other crisis, to maintain their diabetes self-management routines.
Aim: To explore daily life with type 1 diabetes in families with an adolescent with type 1 diabetes. Background: Management of adolescent type 1 diabetes is carried out in the context of everyday life, thus involving and affecting the entire family. Type 1 diabetes causes disruption of family life, but the specific experiences and challenges of adolescents with type 1 diabetes, siblings and parents are not well-explored. Specifically, research is lacking on the siblings' experience of adolescents with type 1 diabetes. Design: A qualitative design using participatory workshops. Methods: A sample of 21 families comprising adolescents with type 1 diabetes (aged 8-18) (N = 20), their parents (N = 29) and siblings (N = 10) participated in four workshops exploring everyday life in families with adolescent diabetes from the perspective of all family members. Data were analysed using systematic text condensation. The COREQ checklist was used preparing the manuscript. Results: Family life with type 1 diabetes was characterised by three overarching themes: (a) the perpetual challenges and disruptive nature of life with diabetes, (b) different ways of worrying about diabetes and (c) diabetes autonomy and emancipation from parents. All family members' lives were marked by these aspects, however in different ways and to varying degrees. Conclusions: Our findings emphasise that type 1 diabetes is indeed a family illness affecting all family members. The study provides insight into the unique experiences of adolescents with diabetes, their parents and siblings, all of whom encounter diabetesrelated challenges in their daily lives. Relevance to clinical practice: The findings call for the inclusion of all family members of adolescents with type 1 diabetes in both research and healthcare practice. Familyoriented approaches targeting adolescents with diabetes as well as their parents and siblings will enable provision of nursing care that can meet the needs of the entire family.
Well-being at work is important to quality of life. However, reconciling work and diabetes management is often challenging; failing to do so threatens the well-being of people with type 1 diabetes (T1D). We explored the mechanisms underlying diabetes-specific challenges at work using theories of logics, involvement, and action space. Thematic analyses of two data sets, consisting of interviews with adults with T1D ( n = 22) showed that people with T1D experience a conflict between two logics linked to diabetes and work, owing to the contradictory demands of work life and diabetes management. Individuals’ ability to lower the priority of work tasks—shifting them from their main to a side involvement so as to properly manage T1D—helps resolve the conflict, as does being able to create an enabling action space for diabetes management at work. These insights can inform interventions targeting the well-being of workers with T1D.
Peer support is a method often used in diabetes support and education programs to improve good health and wellbeing among people with diabetes. However, the evidence is insufficient to determine which peer support elements that are effective and the specific approaches to facilitation of peer support are often not explicitly described. Obtaining the experience of diabetes-specific social capital is one important outcome of peer support. However, little is known about how to enhance diabetes-specific social capital. The aim of this study was to explore facilitators of diabetes-specific social capital through peer support in group meetings. Data consisted of audio recordings of plenary discussions from eight peer support meetings conducted in a diabetes specialist clinic and researchers’ observation notes from the meetings. Furthermore, 25 of 30 participants were interviewed. Participants consisted of a group of adults with type 1 diabetes treated with insulin pump. Systematic text condensation was used to analyze data, showing that participants’ experiences of diabetes-specific social capital related to feeling trust, collectiveness, reciprocity and relevant experience sharing. The overall mechanisms found to facilitate diabetes-specific capital related to the provision of 1) practical and concrete insights 2) focused experience sharing and 3) an open and safe forum to talk about diabetes. Specific facilitators included opportunities for participants to e.g., show and tell how they managed diabetes, demonstrating practical diabetes routines during the meetings, experience diversity in how to manage diabetes and be able to joke about diabetes. This study highlights concrete facilitators of diabetes-specific peer support which makes a significant positive difference to quality of everyday life with diabetes. Further studies are needed to explore in depth the effect of these mechanisms on emotional as well as physical health in larger and various diabetes populations. Disclosure L.E. Joensen: None. M. Overgaard: None. K. Nørgaard: Advisory Panel; Self; Abbott, Medtronic, Novo Nordisk A/S. Speaker's Bureau; Self; Bayer US, Medtronic, Roche Diabetes Care, Rubin Medical, Sanofi, Zealand Pharma A/S. Stock/Shareholder; Self; Novo Nordisk A/S. I. Willaing: None.
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