The purpose of this research was to explore the characteristics of nurses who care for dying infants and their families to better understand their strengths in this specialty and seek to give guidance to the nurse in this role. Introduction Caring for an infant and family at the end-of-life for the infant requires a unique set of nursing skills and characteristics. Nurses who have that skill set can shed light on the role and the individual strengths needed for success. Methods A phenomenological approach was used to examine the perceived traits and skills needed for these nurses. Eight participants were interviewed about their experience of working with these families. Interviews were audio-taped, transcribed verbatim, and analyzed using codes and categories. Four themes emerged. Results The four themes identified were flexibility, making memories, compassion, and nonjudgment. Discussion Understanding some of the characteristics required for this unique role can help nurses self-reflect and continue to care for these families and themselves during this sacred time. The findings have value for all pediatric nurses who care for children who may die.
that the Sugar Bureau will not take advantage of this opportunity to gain spurious scientific respectability from the association. It is unwise for the council to become involved with an organisation that clearly has an ulterior motive and cannot be considered to be interested solely in scientific matters. We hope that our colleagues in the medical profession will note this strange policy of the Medical Research Council and be warned of any further association it may develop in future with a body whose prime purpose is to promote a product known to be harmful to health.
The diagnosis of cleft anomalies evokes many emotions for parents, creating a significant psychosocial burden and ripple effect on the family. Parents report feeling fearful after diagnosis and overwhelmed on how to care for their child. They feel unprepared to manage the social response to a visible congenital malformation such as cleft lip and palate. Parents of children born with congenital malformations such as cleft palate have many obstacles to overcome in their child's lifetime, but many do not even know where to begin. Support for parents of children with palate should begin at diagnosis, as it takes time for these families to process how their child's congenital malformation will affect the quality of life of the family and the child. This article reviews the ways healthcare teams can support parents through diagnosis, coping, feeding, and surgical experiences and provides resources for providing care for these families.
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