This study reports on the validity of the 15-item Portuguese version of the Systemic Clinical Outcome Routine Evaluation (SCORE-15; Vilaça, Silva, & Relvas, 2014), a brief and comprehensive measure of family functioning. Previous studies with SCORE-15 show that this version replicates the three-factor solution found for the original English version: Family strengths, Family communication and Family difficulties. In addition to reviewing previous studies, this article analyses the discriminant, convergent and predictive validity of the Portuguese SCORE-15. To do so, the SCORE-15 was administered to family members attending systemic family or couple's therapy at the start of the first and fourth sessions and also to a group of non-clinical individuals. Overall, data are reported from 618 participants, including 136 from families attending systemic therapy and 482 community family members. Comparisons of community and clinical samples (discriminant validity) showed statistically significant differences for the total scale and subscales (p < .001), with the community participants presenting healthier family functioning than the clinical ones. Analyses using SCORE-15 and the Quality of Life - adult version, another family measure applied simultaneously (convergent validity), indicate that both scales are significantly (p < .01) and moderately (r = -.47) correlated. Mean score analysis of SCORE-15's therapeutic sensitivity to change (predictive validity) showed that only the Family communication subscale was sensitive to statistically significant improvement (p < .05) from session 1 to session 4, whereas the SCORE-15's reliability change index points to its ability to detect clinical improvements (RCI = 14%).
The Systemic Clinical Outcome and Routine Evaluation (SCORE) is one of the most effective evaluation instruments to assess family functioning and to test family therapy results. To determine its applicability in the Portuguese context, we analysed the psychometric characteristics of the short (SCORE-15) and long (SCORE-28) versions using a combined sample of 538 Portuguese participants. Results indicate that both versions demonstrate good internal consistency, replicate the original trifactorial solution and significantly differentiate between clinical and community samples. The SCORE-15 predicted 93.3 per cent of the SCORE-28 results. Both instruments' reference values and cut-off points were established. These findings allow us to claim that the current Portuguese translation provides data that are comparable with, and of the same quality as, those obtained using the English language versions. The Portuguese versions can therefore be recommended to measure family functioning in routine clinical practice and research.Practitioner points • SCORE-15 and 28 are effective in the measurement of the family relationships in general and the family strengths, communication and difficulties in particular • They represent sound and useful tools that may be used for research and intervention purposes, both in clinical and community contexts, when a Portuguese version is required • The short version is most appropriate for the clinical context due to its conciseness and stronger capacity to predict family functioning
A navegação consulta e descarregamento dos títulos inseridos nas Bibliotecas Digitais UC Digitalis, UC Pombalina e UC Impactum, pressupõem a aceitação plena e sem reservas dos Termos e Condições de Uso destas Bibliotecas Digitais, disponíveis em https://digitalis.uc.pt/pt-pt/termos. Conforme exposto nos referidos Termos e Condições de Uso, o descarregamento de títulos de acesso restrito requer uma licença válida de autorização devendo o utilizador aceder ao(s) documento(s) a partir de um endereço de IP da instituição detentora da supramencionada licença. Ao utilizador é apenas permitido o descarregamento para uso pessoal, pelo que o emprego do(s) título(s) descarregado(s) para outro fim, designadamente comercial, carece de autorização do respetivo autor ou editor da obra. Na medida em que todas as obras da UC Digitalis se encontram protegidas pelo Código do Direito de Autor e Direitos Conexos e demais legislação aplicável, toda a cópia, parcial ou total, deste documento, nos casos em que é legalmente admitida, deverá conter ou fazer-se acompanhar por este aviso. "The SCORE approach starts from the systemic belief that the ways that relationships operate within the family are central to the welfare of all family members." (Stratton et al., 2014, p. 4) Resumo Em 2010, Stratton, Bland, Janes e Lask desenvolvem um instrumento breve composto por 15 itens que permitem avaliar vários aspetos do funcionamento familiar, sensíveis à mudança terapêutica, o Systemic Clinical Outcome and Routine Evaluation (SCORE -15). Neste capítulo apresentam -se os estudos de adaptação e validação da versão portuguesa do SCORE -15 numa amostra combinada (comunitária e clínica) de 513 participantes de todo o país. A análise fatorial exploratória indica -nos uma solução fatorial de três fatores, tal como a estrutura da versão original, embora o agrupamento dos itens não replique a solução fatorial original. Na análise confirmatória verificou -se uma correspondência exata com os fatores da escala original: Recursos Familiares, Comunicação na Família e Dificuldades Familiares. A versão portuguesa do SCORE -15 evidencia 2 4 igualmente uma boa consistência interna em termos da escala global e das suas dimensões. Os resultados são discutidos com base na utilidade do SCORE -15 para a investigação e prática clínica. Palavras -chave: funcionamento familiar, análise fatorial exploratória, análise fatorial confirmatória, SCORE -15. Abstract In 2010, Stratton, Bland, Janes and Lask developed a brief measure composed by 15 items to evaluate several indicators of family functioning, sensitive to therapeutic change, the Systemic Clinical Outcome and Routine Evaluation (SCORE -15). In this chapter we present the adaptation and validation studies of the Portuguese version of SCORE -15 in a combined sample (community and clinical) of 513 participants from all over the country. Factor analysis revealed a three -factor solution, as the original factor structure, although the items combination does not replies the original factor solution. Confirmatory factor a...
Literature shows that spirituality is a helpful resource for patients to cope with illness, having a positive impact on their quality of life. This study aimed to analyze the psychometric qualities of the Spiritual and Religious Attitudes in Dealing with Illness (SpREUK) using a sample of 128 Portuguese Alzheimer's patients. Results showed that the instrument kept its original factorial structure, with a good adjustment and reliability in all subscales, and associations with quality of life and mindfulness. Therefore, the Portuguese version of the SpREUK has appropriate psychometric properties and is an important resource to assess spirituality in Alzheimer's patients.
Objectives: This study aimed to assess the relationship between sociodemographic, clinical, and psychological variables with quality of life (QoL) and the moderating role of caregivers' age and caregiving duration in caregivers of patients with Multiple Myeloma. Method: The sample included 118 caregivers who completed questionnaires that assessed psychological morbidity, satisfaction with social support, coping, burden, unmet needs, and QoL. Results: High psychological morbidity, burden and information, financial and emotional unmet needs were associated with lower QoL, while higher satisfaction with social support and more effective use of coping strategies were associated with better QoL. Women caregivers reported more satisfaction with social support and those who did not choose to care reported greater financial unmet needs and more use of coping strategies. The relationship between caregivers' psychological morbidity/social support and QoL was mediated by emotional needs and double mediated by coping and burden. The caregivers' age moderated the relationship between psychological morbidity/social support and emotional needs. Conclusion: Interventions to support the caregiver's emotional needs to promote their QoL are needed. These should be particularly tailored for older caregivers reporting greater psychological morbidity and younger caregivers less satisfied with their social support, as they have a negative indirect impact on their QoL.
Objectives: This study examined the mediator role of mindfulness and spirituality in the relationship between psychological morbidity, awareness of the disease, functionality, social support, family satisfaction, and quality of life (QoL) in patients with mild AD. Method: The sample consisted of 128 patients who answered the Cognitive and Affective Mindfulness Scale-Revised (CAMS-R), the Assessment Scale of Psychosocial Impact of the Diagnosis of Dementia (ASPIDD), the Hospital Anxiety and Depression Scales (HADS), the Satisfaction with Social Support Scale (SSSS), the Family Satisfaction Scale (FSS), the Spiritual and Religious Attitudes in Dealing with Illness (SpREUK), the Index of Barthel, and the Quality of Life-Alzheimer's Disease (QoL-AD). Results: Mindfulness and spirituality mediated the relationship between functionality, awareness of the disease, family satisfaction and QoL. Psychological morbidity had a direct negative impact on QoL and was negatively associated with awareness of the disease, family satisfaction and social support. Mindfulness was negatively associated with spirituality and the latter was negatively associated with QoL. More social support was associated with greater awareness of the disease and family satisfaction. More functionality, awareness of the disease and family satisfaction contributed to more QoL and this relationship was mediated by mindfulness and spirituality. Conclusion: Interventions directed at the promotion of the QoL of patients with mild AD should focus on the promotion of mindfulness skills in AD patients, in addition to the reduction of psychological morbidity and the promotion of functionality, awareness of the disease, family relationships and social support.
Purpose The diagnosis of multiple myeloma (MM) has a significant impact on patients. This study analyzed the mediating role of patients' unmet needs in the relationship between psychological morbidity/social support and quality of life (QoL). Methods This study included 213 patients with MM recruited from the outpatient medical oncology and clinical hematology services from five hospitals. Patients who meet the study criteria were referred by physicians and invited to participate in the study by the researcher. All participants answered the following questionnaires: Hospital Anxiety and Depression Scale, Satisfaction with Social Support Scale, Short-Form Survivor Unmet Needs Survey, and The European Organization for Research and Treatment of Cancer's Multiple Myeloma Module. Descriptive statistics, bivariate correlations, and structural equation modeling were performed to analyze the data. ResultsThe indirect effect of psychological morbidity on patients' future perspectives (MYFP) was partially mediated by information unmet needs (INF), while the indirect effect of psychological morbidity on treatment side effects (MYSE) was partially mediated by relationship and emotional unmet needs (REH). In turn, the indirect effect of psychological morbidity on disease symptoms (MYDS) was fully mediated by REH. Social support had an indirect effect on MYDS and MYSE fully mediated by REH. Conclusion Intervention programs tailored to promote MM patients' QoL should specifically address information and emotional needs, raising awareness and training health professionals, caregivers, and family members to attend MM patients' unmet needs.
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