According to UNESCO guidelines, one of the four forms of bioethics committees in medicine are the Hospital Ethics Committees (HECs). The purpose of this study was to evaluate how the above guidelines are implemented in real practice. There were 111 hospitals selected out of 176 Polish clinical hospitals and hospitals accredited by Center of Monitoring Quality in Health System. The study was conducted by the survey method. There were 56 (50%) hospitals that responded to the survey. The number of HECs members fluctuated between 3 and 16 members, where usually 5 (22% of HECs) members were part of the board committee. The composition of the HECs for professions other than physicians was diverse and non-standardized (nurses-in 86% of HECs, clergy-42%, lawyers-38%, psychologists-28%, hospital management-23%, rehab staff-7 %, patient representatives-3%, ethicists-2%). Only 55% of HECs had a professional set of standards. 98% of HECs had specific tasks. 62% of HECs were asked for their expertise, and 55% prepared <6.88% of the opinions were related to interpersonal relations between hospital personnel, patients and their families with emphasis on the interactions between superiors and their inferiors or hospital staff and patients and their families. Only 12% of the opinions were reported by the respondents as related to ethical dilemmas. In conclusion, few Polish hospitals have HECs, and the structure, services and workload are not always adequate. To ensure a reliable operation of HECs requires the development of relevant legislation, standard operating procedures and well trained members.
Fuelled by the popularity and uptake of the World Wide Web since the 1990s, many researchers and commercial vendors have focussed on Adaptive Hypermedia Systems as an effective mechanism for disseminating personalised information and services. Such systems store information about the user, such as their goals, interests and background, and use this to provide a personalised response to the user. This technology has been applied to a number of contexts such as education systems, e-commerce applications, information search and retrieval systems.As an increasing number of systems collect and store personal information about their users to provide a personalised service, legislation around the world increasingly requires that users have access to view and modify their personal data. The spirit of such legislation is that the user should be able to understand how personal information about them is used. There literature has reported benefits of allowing users to access and understand data collected about them, particularly in the context of supporting learning through reflection. Although researchers have experimented with open user models, typically the personalisation is inscrutable: the user has little or no visibility in to the adaptation process. When the adaptation produces unexpected results, the user may be left confused with no mechanism for understanding why the system did what it did or how to correct it.This thesis is the next step, giving users the ability to see what has been personalised and why. In the context of personalised hypermedia, this thesis describes the first research to go beyond open, or even scrutable user models; it makes the adaptivity and associated processes open to the user and controllable. The novelty of this work is that a user of an adaptive hypertext system might ask How was this page personalised to me? and is able to see just how their user model affected what they saw in the hypertext document. With an understanding of the personalisation process and the ability to control it, the user is able to steer the personalisation to suit their changing needs, and help improve the accuracy of the user model.Developing an interface to support the scrutinisation of an adaptive hypertext is difficult. Users may not scrutinise often as it is a distraction from their main task. But when users need to scrutinise, perhaps to correct a system misconception, they need to easily find and access the scrutinisation tools.Ideally, the tools should not require any training and users should be able to use them effectively without prior experience or if have not used them for a long time, since this is how users are likely to scrutinise in practice.The contributions of thesis are: (1) SASY/ATML, a domain independent, reusable framework for creation and delivery of scrutable adaptive hypertext; (2)a toolkit of graphical tools that allow the user to scrutinise, or inspect and understand what personalisation occurred and control it; (3) evaluation of 4 the scrutinisation tools and (4) a set of g...
This paper reports the results of a workshop held in January 2013 to begin the process of establishing standards for e-learning programmes in the ethics of research involving human participants that could serve as the basis of their evaluation by individuals and groups who want to use, recommend or accredit such programmes. The standards that were drafted at the workshop cover the following topics: designer/provider qualifications, learning goals, learning objectives, content, methods, assessment of participants and assessment of the course. The authors invite comments on the draft standards and eventual endorsement of a final version by all stakeholders.
The Omron HEM-907 oscillometric method of BP measurement should not be used to measure BP before and after HD in ESRD patients. In ESRD patients, an alternative method of BP measurement, in the event of a lack of a mercury sphygmomanometer, could be a classical auscultatory method together with the Omron HEM-907, which allows for this type of BP measurement.
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