Median age (range) at start of treatment was 14.8 yrs (9.7,18.0) and this remained unchanged during 2011-2018 (p=0.543). GnRHa was discontinued in 5/65 (8%) YP [1 (2%) birth-assigned female, 4 (19%) birthassigned males, p=0.018] after a median (range) duration of 0.8 yrs (0.5,1.5). Twenty-two YP started gender-affirming hormones (17 birth-assigned females, 5 birth-assigned males). Median age (range) at start was 16.21 yrs (16.04,17.13). In one YP, this was discontinued, after a period of 0.33 yrs. Overall, 3/74 (4%) YP (1 birth-assigned female, 2 birth-assigned males) were no longer experiencing gender dysphoria during the period of attending paediatric endocrinology and discontinued treatment. Conclusion There has been a marked increase from 2016 onward in prevalence of YP with GD referred to paediatric endocrinology, requiring an evolution in the structure of a whole service. Pursuit of fertility preservation has been poor and requires closer consideration.
MethodAfter establishing a group of regular attendees to our Diabetes Education Days we wanted to make these more patient centred. We obtained a grant from the Diabetes Research and Wellness Foundation. Through the medium of puppet making and learning film skills the young people felt empowered producing their own educational film. Throughout the process, of four sessions spread over four weeks, the young people were supported by a multidisciplinary team consisting of consultant paediatrician, a specialist diabetes nurse, the deputy head of the Hospital school, a dietician, a team of professional puppet makers, and a film making expert. In addition to filming the actual process, the participants wrote and filmed their individual screenplays. There was opportunity to explore individual experiences and knowledge of diabetes in a fun, non-judgemental setting. Full consent was given by all attendees regarding the final distribution and use of the film.ResultsThe first of four sessions was a resounding success. Young people were desperate to attend the following sessions, altering schedules to ensure they could make them. During the process it became very clear they would like the film to be used as an educational tool. The response to the first viewing has given great verbal feedback and we are now in the process of collating formal qualitative data from the following groups: Children at the Royal Free Hospital School without diabetes, those with a new diagnosis and those who already have diabetes, which will be ready to be shared at the conference.ConclusionYoung people with diabetes embraced these sessions with huge enthusiasm. Having previously not known each other they quickly formed friendships and all actively took part, encouraging each other. They expressed and explored their knowledge in a relaxed environment, very different from clinic; given a rare and valuable opportunity to fully voice their opinions. At the same time, they loved the idea that the film productions they contributed to may go on to help other people.For the professionals it was an incredibly inspiring experience and the film really does show diabetes through the eyes of the young people themselves.
AimTo further aid the transition of children with diabetes from primary to secondary school through the embedding of educational activities designed together with our teaching colleagues and multidisciplinary Paediatric Diabetes Team. Improving the understanding of diabetes and how best it can be controlled and monitored.Methods10 patients with diabetes, aged between 10–12 years, and their families were invited to the Royal Free Hospital Children’s School from 11.30am until 3.30 pm during the school half term. The activities covered the following topics, Diabetes UK, Juvinille Diabetes Research Foundation, food you would keep game, Free Style Libra intro, Carb Counting Quiz, Carb counting todays lunch and correction doses for you, were under taken and throughout the day they all had chance to trail the Free Style Libra blood Glucose monitors.Pre and Post evaluation forms were completed at the end of the session, then all the patients were contacted two weeks later to assess their impressions regarding the use of the monitors provided on the day.This educational model was developed from the previous year, by the addition of Freestyle Libra trails throughout the day.ResultsThere was a measurable improvement in both parent and children’s knowledge of insulin and carbohydrates, the ability to identify and measure the carbohydrate content of different foods, awareness of charities working in diabetes and an improvement in understanding, access and application of diabetes related technology now available.ConclusionMaintaining and developing the previous year’s programme, by the introduction of the new technology leads to improved patient uptake and outcomes.We are generating a sustainable social network with professionals and families where good practice can be shared.
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