Purpose To describe parents’ perspectives of health care provider actions that helped or did not around the time of infant/child’s intensive care unit (ICU) death. Semistructured interviews with 63 parents (Black, White, and Hispanic) 7 months post infant/child death were audio-recorded, transcribed, analyzed, and themes identified. Findings What helped most: compassionate, sensitive staff; understandable explanations of infant’s/child’s condition; experienced, competent nurses; providers did everything to help infant/child; and parents’ involvement in care decisions. What did not help: insensitive, nonsupportive staff; conflict between providers and parents; communication problems around the death; inexperienced nurses and doctors; parents not understanding child’s disease, care, complications. Conclusions Compassionate, sensitive staff and understandable explanations of children’s conditions were most helpful; insensitive, nonsupportive staff least helpful by gender, racial group, or care setting. Conflict between providers and parents was most problematic for minority parents and mothers.
Purpose Physical inactivity and obesity are major U.S. health concerns. Hispanics have higher rates of obesity and lower incidence of meeting physical activity (PA) recommendations, however most studies on PA focus on non‐Hispanic Whites. This study examined type and amount of physical activities, and their relationship to age, BMI, employment, and stress in adult female Hispanics. Data sources Sixty‐three female Hispanics (mean age 34 years, SD = 10.5) were recruited in the Miami community. By BMI, of 47 women reporting both weight and height, 8.5% were underweight, 38.3% were normal weight, 27.2% were overweight, and 26.0% were obese. Women completed two instruments measuring PA and two measuring stress. Conclusions Attitudes toward PA were positive; greatest concerns were job security and finances not exercise. Leisure walking (14.3%) was the most common type of PA followed by activities watching TV (32.8%) and using video games (32.8%). Women with greater stress had higher BMIs and were less physically active (p < .05). Implications for practice In this sample, exercise was not a main priority although 53% were overweight/obese. Stress related to employment and finances was a major concern. Interventions on stress reduction and incorporating exercise within their daily lives are important strategies.
Background More than 55 000 children die annually in the United States, most in neonatal and pediatric intensive care units. Because of the stress and emotional turmoil of the deaths, the children’s parents have difficulty comprehending information. Objectives To compare parents’ reports and hospital chart data on cause of death and examine agreement on cause of death according to parents’ sex, race, participation in end-of-life decisions, and discussion with physicians; deceased child’s age; unit of care (neonatal or pediatric); and hospital and intensive care unit lengths of stay. Methods A descriptive, correlational design was used with a structured interview of parents 1 month after the death and review of hospital chart data. Parents whose children died in intensive care were recruited from 4 South Florida hospitals and from Florida Department of Health death records. Results Among 230 parents, 54% of mothers and 40% of fathers agreed with the chart cause of death. Agreement did not differ significantly for mothers or fathers by race/ ethnicity, participation in end-of-life decisions, discussions with physicians, or mean length of hospital stay. Agreement was better for mothers when the stay in the intensive care unit was the shortest. Fathers’ agreement with chart data was best when the deceased was an infant and death was in the pediatric intensive care unit. Conclusions Death of a child is a time of high stress when parents’ concentration, hearing, and information processing are diminished. Many parents have misconceptions about the cause of the death 1 month after the death.
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