El apoyo a un familiar con discapacidad intelectual puede constituir una fuente importante de estrés. Este estudio explora los factores que contribuyen en el proceso de resiliencia de los familiares de personas con discapacidad intelectual españoles. Para ello se llevaron a cabo entrevistas en profundidad a 32 familiares cuidadores considerados «resilientes» por las asociaciones a las que pertenecen. Los resultados muestran como los familiares son capaces de utilizar diferentes recursos internos y externos para desarrollar resiliencia y adaptarse a la situación de cuidado. Los familiares describieron factores internos como la aceptación, el afrontamiento activo, la toma de perspectiva, el optimismo, la espiritualidad, la transformación en metas, tener una ocupación, el ocio, el mindfulness, vivir el presente y el autocuidado. También fueron mencionados factores externos como el apoyo formal e informal y la economía. Los resultados muestran como estos factores son dinámicos y pueden relacionarse entre ellos. Las implicaciones clínicas de este estudio son descritas.
Acquired brain injury (ABI) is a major public health problem and one of the main causes of disability and death worldwide (Chan et al., 2009). ABI includes a variety of brain injuries that can happen suddenly and unexpectedly in a person's life as a result of a stroke or traumatic brain injury. As a result of ABI, an individual may experience limitations and loss of functionality in several areas. Family members often have to assume the role of caregivers and the responsibility to support a person living with ABI in numerous physical, cognitive, economic, financial, social, and leisure activities (Verhaeghe et al., 2005). In addition, people with ABI frequently experience emotional and behavioral problems that family caregivers have to deal with (López de Arroyabe et al., 2013). All in all, caring for a person with ABI can become a source of stress for family members, especially when the care required is extended over time without adequate formal and informal support resources (Calvete & López de Arroyabe, 2012). As a consequence, caregivers often experience symptoms of anxiety and depression and a decline in their own quality of life (Las Hayas et al., 2015). These consequences are negative not only for the caregiver, since they entail suffering and discomfort for the caregiver, but also for the person with ABI, given that the quality of care can be negatively affected (Sander et al., 2012). Based on the stress and coping process, several studies have shown consistently Clínica y Salud (2021) xx(x) xx-xx Funding: This research was supported by a grant from Aristos Campus Mundus Program and from the Basque Country (Ref. IT982-16).
<p>In recent years, mindfulness-focused interventions have garnered attention in the area of family members of people with an intellectual and developmental disability (IDD). The mindfulness trait has been related to a greater well-being, lower levels of anxiety and depression and a better quality of life in this group. Therefore, developing tools that assess mindfulness is relevant. The aim of this study was to adapt the Five-Facet Mindfulness Questionnaire-Short Form (FFMQ-SF; Bohlmeijer, ten Klooster, Fledderus, Veehof, & Baer, 2011) to Spanish caregivers of people with IDD. Two hundred sixty-five relatives of people with IDD (84.5% women and 15.5 % men) aged between 18 and 80 years participated in the research, completing this questionnaire along with measures of psychological distress and quality of life. The results confirmed the factor structure of the FFMQ-SF, consisting of five correlated factors (Observe, Describe, Act with awareness, Nonreact to inner experience, and Nonjudge inner experience). The factors showed adequate internal consistency. In addition, significant relationships were observed between the most of the mindfulness facets and less psychological distress as well as with better quality of life. The results suggest that the FFMQ-SF can be used adequately with relatives of people with IDD.</p>
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