In Indonesia there is a paradigm shift from institution-based care to family-based care. The paradigm shift led to a new regulation that requires all institution-based systems to strengthen and develop an alternative family-based care system. There are not many institution-based care systems for supporting family-based care programs for disabled children. This article explores family support services for families with disabled children in South Tangerang, Indonesia. The study describes challenges and issues, and focuses on efforts of Sayap Ibu Foundation to strengthen the families' capabilities to survive and prepare better futures for their disabled children. The research used a qualitative-descriptive approach by interviewing four staff, six families with children with disabilities, and six community members. The study finds that family-support services have not been able to deliver services and provide the rights appropriate for the significant numbers of children with disabilities. The limited services were caused by scarcity of human resources even though there are volunteers to help support families with disabled children. The result of the study concludes that there is a critical need for communitybased care programs to strengthen support for the families with disabled children to make them feel socially included in society.
Parental divorce, abandonment, and poverty cause many children separated from their biological parents, and extended family should be responsible for their care. However, the current challenges in Indonesia is that there is no regulation that regulates kinship care, making the caregivers fight themselves to raise and nurture their relatives' children. This study focuses on kinship care for disabled children which have greater challenges than that for normal children. Thus, the research aims to explain the various problems surrounding the kinship care. Through interviews and observations with the social workers and caregivers of Yayasan Sayap Ibu Bintaro (YSIB), complex problems in kinship residency for children are found, viewed from the aspect of caregiver resource, psychological problems experienced by caregivers, and vulnerability in foster children. This research concludes that caregivers' limited resource affects the psychological pressure of caregivers and vulnerability in foster children at least on nutrition, access to health care, and education. A formal and informal support system are needed to support the provision of resources for the upbringing of kinship care through YSIB's development program to strengthen the disabled children's kinship care, and to advocate for health services and financial assistance from the government's social programs, to empower communities to participate in parsing the various socioeconomic problems that exist in kinship care for disabled children.
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