Purpose: To examine the psychometric properties of six outcome measures in people with Parkinson disease (PD). Method: Twenty-four participants completed the following twice within 2 weeks: the timed up-and-go test (TUG), Northwestern University Disability Scale (NUDS), Schwab & England ADL Scale (S&E), Activities-specific Balance Confidence (ABC) Scale, PD Questionnaire-Short Form (PDQ 8), and Stanford Self-Efficacy for Managing Chronic Disease 6-Item Scale (SSE). Internal consistency, test-retest reliability (ICC[3,1]), and minimal detectable change (MDC) scores were calculated. Convergent and discriminant validity of the ABC were examined. Results: Cronbach's alpha scores for the NUDS, ABC, PDQ-8, and SSE were 0.47, 0.92, 0.72, and 0.91 respectively. The intra-class correlation coefficient (ICC [3,1]) for the TUG was 0.69 and could be improved by averaging two trials. ICCs for the NUDS, S&E, ABC, PDQ-8, and SSE were 0.56, 0.70, 0.79, 0.82, and 0.72 respectively. The ABC correlated with the TUG (r ¼ À0.44, p ¼ 0.03) and with PDQ-8 (r s ¼ 0.51, p ¼ 0.01) and NUDS (r s ¼ 0.48, p ¼ 0.02) walking items. The ABC was able to discriminate between stages 1 and 3 of disease progression but not between stages 1 and 2, which suggests that the ABC can distinguish large differences in disease progression but cannot detect more subtle differences. Conclusions: Homogeneity of the ABC, PDQ-8, and SSE is good to excellent. Test-retest reliability scores of all measures except the NUDS are moderate to good. The ABC is a valid measure for use in PD. The MDC statistic may be useful for interpreting group score changes. 0,48, p ¼ 0,02). L'ABC a é té en mesure de sé parer les é tapes 1 et 3 de la progression de la maladie, mais n'a pu le faire entre les é tapes 1 et 2, ce qui porte à croire que l'ABC peut diffé rencier de plus grandes é tapes dans la progression de la maladie, mais ne peut dé tecter les diffé rences plus subtiles. Conclusions : L'homogé né ité de l'ABC, de la PDQ-8 et de la SSE varie de bonne à excellente. Les pointages au chapitre de la fiabilité test-retest de toutes les mesures, sauf celles de la NUDS, varient de modé ré s à bons. L'ABC constitue une mesure valide pour une utilisation pour la maladie de Parkinson. La statistique MDC peut ê tre utile pour l'interpré tation des changements dans les pointages du groupe.
Maintaining health and well-being in people with tSCI demands access to both conventional health care and support services. Implications for Rehabilitation Access to both health and support services are important to maintaining the health and wellness of people with spinal cord injury. People with spinal cord injuries take an active role in coordinating their health, at times assuming various roles to compensate for perceived shortcomings of health care providers. Negotiating balances of power with gatekeepers in the health and insurance sectors was a key function of the coordinating role assumed by people with spinal cord injury. In order to effectively address the needs of this population, a coordinated interdisciplinary out-reach service, which includes peer support, must cross boundaries to engage sectors beyond traditional health care services, such as insurers and wellness providers.
Both measures readily differentiated least active from most active groups. The accelerometer also differentiated moderately active from active groups, suggesting suitability for use in detecting change in more active client groups, while the diary differentiated inactive from moderately active groups, suggesting suitability for use in detecting change in less active groups.
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