Introduction
The Public Health Agency of Canada’s Canadian Chronic Disease Surveillance
System (CCDSS) uses a validated, standardized methodology to estimate prevalence of
individual chronic diseases, such as diabetes. Expansion of the CCDSS for surveillance
of multimorbidity, the co-occurrence of two or more chronic diseases, could better
inform health promotion and disease prevention. The objective of this study was to
assess the feasibility of using the CCDSS to estimate multimorbidity prevalence.
Methods
We used administrative health data from seven provinces and three territories
and five validated chronic conditions (i.e. cardiovascular disease, respiratory disease,
mental illness, hypertension and diabetes) to estimate multimorbidity prevalence. We
produced age-standardized (using Canada’s 1991 population) and age-specific estimates
for two multimorbidity definitions: (1) two or more conditions, and (2) three or more
conditions from the five validated conditions, by sex, fiscal year and geography.
Results
Among Canadians aged 40 years and over in the fiscal year 2011/12, the prevalence
of two or more and three or more chronic conditions was 26.5% and 10.2%,
respectively, which is comparable to other estimates based on administrative health
data. The increase in multimorbidity prevalence with increasing age was similar across
provinces. The difference in prevalence for males and females varied by province and
territory. We observed substantial variation in estimates over time. Results were consistent
for the two definitions of multimorbidity.
Conclusion
The CCDSS methodology can produce comparative estimates of multimorbidity
prevalence across provinces and territories, but there are challenges in using it to
estimate temporal trends. Further expansion of the CCDSS in the number and breadth
of validated case definitions will improve the accuracy of multimorbidity surveillance
for the Canadian population.
Chronic diseases have a major impact on populations and healthcare systems worldwide. Administrative health data are an ideal resource for chronic disease surveillance because they are population-based and routinely collected. For multi-jurisdictional surveillance, a distributed model is advantageous because it does not require individual-level data to be shared across jurisdictional boundaries. Our objective is to describe the process, structure, benefits, and challenges of a distributed model for chronic disease surveillance across all Canadian provinces and territories (P/Ts) using linked administrative data. The Public Health Agency of Canada (PHAC) established the Canadian Chronic Disease Surveillance System (CCDSS) in 2009 to facilitate standardized, national estimates of chronic disease prevalence, incidence, and outcomes. The CCDSS primarily relies on linked health insurance registration files, physician billing claims, and hospital discharge abstracts. Standardized case definitions and common analytic protocols are applied to the data for each P/T; aggregate data are shared with PHAC and summarized for reports and open access data initiatives. Advantages of this distributed model include: it uses the rich data resources available in all P/Ts; it supports chronic disease surveillance capacity building in all P/Ts; and changes in surveillance methodology can be easily developed by PHAC and implemented by the P/Ts. However, there are challenges: heterogeneity in administrative databases across jurisdictions and changes in data quality over time threaten the production of standardized disease estimates; a limited set of databases are common to all P/Ts, which hinders potential CCDSS expansion; and there is a need to balance comprehensive reporting with P/T disclosure requirements to protect privacy. The CCDSS distributed model for chronic disease surveillance has been successfully implemented and sustained by PHAC and its P/T partners. Many lessons have been learned about national surveillance involving jurisdictions that are heterogeneous with respect to healthcare databases, expertise and analytical capacity, population characteristics, and priorities.
Demographic characteristics in combination with drug-utilization patterns can be used to differentiate diabetes type among cases of pediatric diabetes identified within administrative health databases. Validation of similar algorithms in other regions is warranted.
BackgroundWorldwide, there is concern that increases in the prevalence of dementia will result in large demands for caregivers and supportive services that will be challenging to address. Previous dementia projections have either been simple extrapolations of prevalence or macrosimulations based on dementia incidence.MethodsA population-based microsimulation model of Alzheimer’s and related dementias (POHEM:Neurological) was created using Canadian demographic data, estimates of dementia incidence, health status (health-related quality of life and mortality risk), health care costs and informal caregiving use. Dementia prevalence and 12 other measures were projected to 2031.ResultsBetween 2011 and 2031, there was a projected two-fold increase in the number of people living with dementia in Canada (1.6-fold increase in prevalence rate). By 2031, the projected informal (unpaid) caregiving for dementia in Canada was two billion hours per year, or 100 h per year per Canadian of working age.ConclusionsThe projected increase in dementia prevalence was largely related to the expected increase in older Canadians, with projections sensitive to changes in the age of dementia onset.Electronic supplementary materialThe online version of this article (doi:10.1186/s12963-016-0107-z) contains supplementary material, which is available to authorized users.
These results are similar to data from the United States but differ from European data with respect to the annual percent change for incidence as well as age-specific incidence trends. In keeping with the low mortality rates associated with type 1 diabetes, the prevalence continues to rise.
Introduction: The objective of our study was to present model-based estimates and projections on current and future health and economic impacts of multiple sclerosis (MS) in Canada over a 20-year time horizon .
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