This article describes the work of the ‘Action on Living Well: Asking You’ group – an involvement group of people with dementia and carers attached to the IDEAL research study. The article describes the work of the group, the methods that have helped them to stay involved and people’s perspectives on their experiences of being involved and the impact it has had, for themselves and others. The article has been written following a reflective piece of work with the ‘Action on Living Well: Asking You’ group to review and remember the work of the past four years. An accompanying film brings to life the work and activities of the group, available at www.idealproject.org.uk/mclass/
In this editorial, we challenge the current understanding of “Living Well with Dementia.” Such discourse introduces the possibility of not living well with the condition or even of “living badly with dementia.” Numerous words might be relevant here – grief, pain, anguish, depression – but in this editorial we consciously use the word “suffering.” This term is used for two reasons; one, because it captures the attributes of other more limited words, and, two because the language of “suffering” is contentious, making it suitable for debate. We speak of suffering, not to deny the positive aspects of life with dementia or to concentrate just on the negative, but to redress the balance that is disturbed by a relentlessly positive view of living with the condition. Our aim is to promote a more realistic understanding of the dementia experience, one based on actualities and evidence rather than presumption and sentiment.
Younger people living with dementia (YPD) have been actively engaged in challenging society's attitude to dementia. Despite their increased visibility though, there are substantial obstacles for YPD in receiving a timely and accurate diagnosis and gaining access to appropriate support. Keith Oliver, has been an active member of the Patient and Public Involvement (PPI) Forum for the Angela Project, an Alzheimer's Society funded project aimed at improving accuracy of diagnosis and post-diagnostic support for younger people living with dementia. In this article, Keith shares his experience of receiving a diagnosis of dementia and how he has since been involved in research projects, highlighting the benefits of PPI for both the person living with dementia, as well as for the research group. Keith concludes by encouraging better PPI practice in all projects, emphasising the benefits to all those involved in research.
“For every action there is an equal and opposite reaction.” “Except when a bug hits your car window, the car must exert more force on the bug because Newton’s laws only apply in the physics classroom, right?” Students in our classrooms were able to pick out definitions as well as examples of Newton’s three laws; they could recite the laws and even solve for force, mass, and acceleration. However, when given “real world” questions, they would quickly revert to naive explanations. This frustration led to an examination of our approach to teaching Newton’s laws. Like many, we taught Newton’s laws in their numerical order—first, second, and then third. Students read about the laws, copied definitions, and became proficient with vocabulary before they applied the laws in a lab setting. This paper discusses how we transformed our teaching of Newton’s laws by flipping the order (3, 2, 1) and putting the activity before concept, as well as how these changes affected student outcomes.
If you would like to write for this, or any other Emerald publication, then please use our Emerald for Authors service information about how to choose which publication to write for and submission guidelines are available for all. Please visit www.emeraldinsight.com/authors for more information. About Emerald www.emeraldinsight.comEmerald is a global publisher linking research and practice to the benefit of society. The company manages a portfolio of more than 290 journals and over 2,350 books and book series volumes, as well as providing an extensive range of online products and additional customer resources and services.Emerald is both COUNTER 4 and TRANSFER compliant. The organization is a partner of the Committee on Publication Ethics (COPE) and also works with Portico and the LOCKSS initiative for digital archive preservation. AbstractPurpose -The purpose of this paper is to demonstrate how service user involvement for people living with a diagnosis of dementia can contribute to innovate ways of training and educating a skilled healthcare workforce. Design/methodology/approach -The paper uses a case study approach, including interviews observations and reflections from facilitators and members of a service user group for people living with dementia in a recovery-based older adult service in East Kent, UK. In total, 11 people were involved in this study: five people are living with a diagnosis of dementia, two are clinical psychologists, two are trainee clinical psychologists and two are placement year psychology undergraduates. Findings -The paper shows how service user involvement groups can enable people with dementia to train a wide range of healthcare professionals in different areas, from the perspective of people living with dementia and healthcare professionals. It also reflects on the challenges that can arise through working with patients in a more collegiate way. Originality/value -This paper demonstrates that people with dementia can be involved in the training of healthcare professionals in innovative ways. It therefore suggests new ways of working with people with dementia to develop staff skills.
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