This study illuminates the social realities of inclusion of 16 high functioning children with autism (HFA) in public schools in the United States. The study suggests that the practice of inclusion rests primarily on unaffected schoolmates rather than teachers, who typically are occupied monitoring academic progress and disciplinary transgressions across a range of children. Utilizing ethnographic observations and video recordings of quotidian classroom and playground activities, the analysis elucidates how classmates employ a range of positive and negative inclusion practices that either integrate or distance autistic children. Ethnographic observations of the study population indicate that the children whose diagnosis was fully disclosed enjoyed more consistent social support in the classroom and on the school playground. The study further suggests that high functioning children with autism exhibit a range of reactions to negative inclusion practices such as rejection and scorn. Such reactions include oblivion, immediate behavioral response, and emotionally charged accounts of disturbing school incidents shared after-the-fact with family members. Significantly, these observations indicate that HFA children can be cognizant of and distressed by others' derisive stances and acts, despite symptomatic difficulties in interpreting others' intentions and feelings.
This article offers an anthropological perspective on autism, a condition at once neurological and social, which complements existing psychological accounts of the disorder, expanding the scope of inquiry from the interpersonal domain, in which autism has been predominantly examined, to the socio-cultural one. Persons with autism need to be viewed not only as individuals in relation to other individuals, but as members of social groups and communities who act, displaying both social competencies and difficulties, in relation to socially and culturally ordered expectations of behavior. The article articulates a socio-cultural approach to perspective-taking in autism in three social domains: (1) participating in conversational turn-taking and sequences; (2) formulating situational scenarios; and (3) interpreting socio-cultural meanings of indexical forms and behavior. Providing ethnographic data on the everyday lives of high-functioning children with autism and Asperger syndrome, the article outlines a cline of competence across the three domains, from most success in conversational turn-taking to least in inferring indexical meanings. Implications of these abilities and limitations are considered for theoretical approaches to society and culture, illuminating how members of social groups are at once shaped by, and are agents of, social life and cultural understanding.
Over the years, children with autism have often been portrayed in the professional literature and the popular media as asocial creatures bereft of words and subjective worldviews. Alternatively, I examine the lived contexts in which children with autism spectrum disorders actively engage with family members in coconstructed narrative recountings of personal life events, and are apprenticed into culturally consonant genres of life narrative as a technology of the self. Employing naturalistic video‐ and audio‐taped data documenting the everyday lives of 17 U.S. children diagnosed with high functioning autism and Asperger's syndrome, I demonstrate how everyday narratives of personal experience offer a vehicle for expression of the children's subjective life worlds and a venue for self‐presentation and intersubjective attunement in which social and moral distinctions of normativity and difference are at stake. These deeply interactive self‐fashioning processes highlight and make visible the dynamic intersubjective practices that contribute to human subjectivity. [autism, children, narrative, self, sociality]
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