BackgroundRecently, significant research effort has focused on using Twitter (and other social media) to investigate mental health at the population-level. While there has been influential work in developing ethical guidelines for Internet discussion forum-based research in public health, there is currently limited work focused on addressing ethical problems in Twitter-based public health research, and less still that considers these issues from users’ own perspectives. In this work, we aim to investigate public attitudes towards utilizing public domain Twitter data for population-level mental health monitoring using a qualitative methodology.MethodsThe study explores user perspectives in a series of five, 2-h focus group interviews. Following a semi-structured protocol, 26 Twitter users with and without a diagnosed history of depression discussed general Twitter use, along with privacy expectations, and ethical issues in using social media for health monitoring, with a particular focus on mental health monitoring. Transcripts were then transcribed, redacted, and coded using a constant comparative approach.ResultsWhile participants expressed a wide range of opinions, there was an overall trend towards a relatively positive view of using public domain Twitter data as a resource for population level mental health monitoring, provided that results are appropriately aggregated. Results are divided into five sections: (1) a profile of respondents’ Twitter use patterns and use variability; (2) users’ privacy expectations, including expectations regarding data reach and permanence; (3) attitudes towards social media based population-level health monitoring in general, and attitudes towards mental health monitoring in particular; (4) attitudes towards individual versus population-level health monitoring; and (5) users’ own recommendations for the appropriate regulation of population-level mental health monitoring.ConclusionsFocus group data reveal a wide range of attitudes towards the use of public-domain social media “big data” in population health research, from enthusiasm, through acceptance, to opposition. Study results highlight new perspectives in the discussion of ethical use of public data, particularly with respect to consent, privacy, and oversight.
This study analyzes images and associated commentary from an online image-sharing community (www.imgur.com). We hypothesize that, in the presence of overt communication of social rules, site content will reflect a somewhat consistent, content convergence irrespective of who comments, given that an individual's social identity, rather than their individual identity, will dominate their online interactions. From a random sample of 5,000 images grouped into six categories, we randomly selected 10 images from each category, and conducted a close qualitative analysis of the micro-comments submitted in response to those images. Our results suggest that there is an overt communication of behavioral standards through explicit behavior correction by other site members. Content convergence can also be observed both in responses to a single image, and more broadly in comment similarity across images and even categories. Cultural norms and resulting content convergence suggests that individuals may come to see themselves as representatives of the site when they postand may modify their behavior accordingly. This may lead to the perception that a common voice appears throughout the site, which may have implications for the communication of social support over the Internet, and for more quantitative analyses.
Online groups can become communities, developing group identification and fostering deindividuation. But is this possible for very large, anonymous groups with low barriers to entry, highly constrained formats, and great diversity of content? Applying social identity theory and social identification and deindividuation effects theory, this study assesses influences on group identification and deindividuation in the case of Imgur.com . Respondents reported slightly positive levels of the three forms of group identification, but mixed levels of two forms of deindividuation. As argued by proponents of computer-mediated communication, demographics play only a minor role on these outcomes. More involved usage, such as direct access and commenting on images, is more associated with these outcomes, while more basic usage, such as total hours and reading comments, has little influence. Deindividuation is positively associated with group identification.
Campuses across the United States continue to welcome a record number of Chinese students coming in pursuit of both academic and cultural goals. Yet, high levels of acculturative stress coupled with difficulties integrating into life abroad jeopardize accomplishing these goals. In this study, we examine Chinese students’ Internet use both prior to and during study abroad, and its effects on stress, integration, and learning while abroad. In-depth interviews were conducted with 18 undergraduate and graduate students from China currently studying in the United States. Findings indicate that although online media and resources provide valuable information to Chinese students, they may also set the stage for entry into established, cohesive co-national peer groups, thereby discouraging integration.
Poor women who live in peri-urban communities are often faced with food insecurity due to seasonal variations in food availability and accessibility. Additionally, in these communities, fertility levels are often elevated despite geographic proximity to urban areas with low cost contraception. We conducted five focus group interviews to investigate the lived experiences of childbearing in peri-urban Ouagadougou, Burkina Faso to understand the behavioral and biological determinants of fertility outcomes. In the analysis of the interviews we pay particular attention to seasonal food insecurity experiences and the biological and behavioral determinants of childbearing. Our results suggest that there are less optimal times of year for childbearing and that poor, peri-urban women adjust their behavior accordingly. The results also suggest that there remain important barriers to contraceptive use even in cases where individuals associate pregnancy and childbearing with physical and psychological risk. This paper provides greater depth in understanding the determinants of fertility in resource-poor, peri-urban communities and points to some barriers for lowering fertility in similar areas.
Background Adolescent and young adult (AYA) childhood cancer survivors (CCS) should be empowered to continue their survivor-focused care as they transition into adult medicine. However, the majority of AYA-aged survivors become lost to follow up around the age of typical transition to adulthood. The purpose of this study was to identify, from the patient’s perspective, key factors that facilitate successful transitions to adult-centered survivorship care. Methods A qualitative study was conducted with AYA CCS (n = 29) from the survivorship clinic of a single institution as key informants. Data were collected through a series of structured phone interviews and subjected to thematic content analysis. Results Four major themes with multiple subthemes were identified: (1) transition practices need to be flexible and individually tailored; (2) effective communication is critical to a successful transition; (3) continuity in providers is needed during the transition; and (4) comprehensive care means care that also addresses psycho-social well-being. Conclusions From the perspective of AYA CCS, the ideal model of transitional survivorship care could include a patient navigator who promotes provider flexibility, consistent communication, and pro-active comprehensive care that encompasses both medical and psycho-social well-being. Models of care for CCS should be built to provide, or seamlessly facilitate, continuous survivor-focused care across the age continuum. A longitudinal relationship with a survivor-focused provider can help promote the values that CCS’ report as important in transitioning care from pediatric- to adult-centered care.
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