Objective: To investigate quality of life (QoL) of caregivers of mild and moderate dementia and the aspects related to QoL. Method: Crosssectional assessment of dyads of people with dementia (PwD) and family caregivers (n=88). Results: Burden (p,0.05) and depressive symptoms (p,0.001) were related to caregivers' QoL in both stages of dementia. In mild dementia, caregivers' depressive symptoms (p,0.001) and PwD neuropsychiatric symptoms (p,0.001) were related to burden. PwD aberrant motor activity (p,0.001) and anxiety (p,0.001), and caregiver-reported QoL domains of friends (p,0.001) and mood (p,0.05) were related to depressive symptoms. In moderate dementia, selfreported QoL (p,0.01) and anxiety (p,0.01), and PwD anxiety (p,0.01) were related to burden. Caregivers' anxiety (p,0.001) and self-reported QoL (p,0.001) were related to depressive symptoms. Conclusion: Burden and depressive symptoms were related to QoL of caregivers of mild and moderate dementia. However, they are driven by different factors according to dementia severity.Keywords: caregivers, quality of life, depression, dementia. RESUMOObjetivo: Investigar qualidade de vida (QdV) de cuidadores na demência leve e moderada e aspectos relacionados. Método: Avaliação transversal de pessoas com demência e cuidadores familiares (n=88). Resultados: Sobrecarga (p,0,05) e sintomas depressivos (p,0,001) estavam relacionados à QdV dos cuidadores nos dois estágios da demência. Na demência leve, sintomas depressivos dos cuidadores (p,0,001) e sintomas neuropsiquiátricos dos pacientes (p,0,001) estavam relacionados à sobrecarga. Atividade motora aberrante (p,0,001) e ansiedade do paciente, bem como domínios amigos (p,0,001) e humor (p,0,05) da QdV do cuidador estavam relacionados aos sintomas depressivos. Na demência moderada, QdV (p,0,01) e ansiedade (p,0,01) do cuidador, e ansiedade do paciente (p,0,01) estavam relacionadas à sobrecarga. Ansiedade (p,0,001) e QdV dos cuidadores (p,0,001) estavam relacionadas aos sintomas depressivos. Conclusão: Sobrecarga e sintomas depressivos estavam relacionados à QdV de cuidadores de pessoas com demência leve e moderada. Entretanto, estes aspectos estão relacionados a diferentes fatores por severidade da demência.Palavras-chave: cuidadores, qualidade de vida, depressão, demência.
Resilience is the capacity for successful adaptation when faced with the stress of adversity. We aimed to investigate the relationship between caregivers’ resilience and the sociodemographic and clinical factors of people with dementia. Cross-sectional assessment of 58 people with dementia and their caregiver dyads showed that most caregivers were female adult children. The caregivers reported moderate to higher levels of resilience, lower levels of anxiety and depressive symptoms and moderate levels of burden. Resilience was not related to the caregiver’s gender (p = 0.883), nor clinical (p = 0.807) or emotional problems (p = 0.420). The regression showed that resilience was related to the caregiver’s quality of life (p < 0.01) and inversely associated with their depressive symptoms (p < 0.01). There was no relationship between caregivers’ resilience and the sociodemographic and clinical characteristics of people with dementia. We can assume that resilience is an individual characteristic. Support groups should also focus on the factors that may increase resilience among caregivers.
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