L'objectif de cette étude consistait à étudier les changements dans la participation de la famille après le déménagement d'un proche dans un établissement de soins de longue durée ainsi que les facteurs liés à ces changements. Des données quantitatives fondées sur des entrevues actives et approfondies ont été recueillies auprès de 35 membres des familles des patients à deux moments différents après le déménagement de leur proche dans un établissement. Les résultats révèlent certains changements, en matière de contacts, liés aux conditions personnelles, sociales, institutionnelles et médicales. Dans certains cas, de nouveaux types de soins ont été fournis ; dans la plupart des cas les soins ont été redéfinis ou fournis de manières différentes. La plupart des participants ne se voyaient pas comme des prestataires de soins, une perception qui est restée stable au cours du temps. Conformément à la théorie de la continuité, dans la plupart des cas, les familles cherchaient à trouver des manières d'adopter une approche constante en ce qui a trait à leurs rô les de proches et de soignants, surtout au cours de la première année qui a suivi le placement. Le personnel des établissements devrait néanmoins être conscient des facteurs qui peuvent causer des changements au cours du temps, du point de vue du rô le joué par la famille en matière de soins, et offrir du soutien aux familles qui doivent gérer ces questions. ABSTRACTThe purpose of this study was to examine changes in family involvement following a relative's move to a long-term care facility as well as factors associated with these changes. Qualitative data, using in-depth, active interviews were gathered from 35 family members at two points in time following a relative's move to a facility. Findings showed some changes in contact that were related to personal, social, institutional, and health conditions. Occasionally, new types of care were provided; more often care was rebalanced or expressed in alternative ways. The majority of participants did not view themselves as caregivers, a perception that remained stable over time. Consistent with continuity theory, families, in most cases, tended to seek ways to maintain consistency in their roles as family members and carers, particularly in the first year or so after placement. Nonetheless, facility staff should be aware of the factors that might influence changes over time in family caregiving roles and offer support to families dealing with these issues.

The purpose of this qualitative study was to learn more about the relationships that families develop with staff who work in the facilities in which their relatives live. Data were collected through participant observation in two long-term care facilities and through personal interviews with 61 family members. Five types of relationships emerged from the data, including relationships that were “collegial,” “professional,” “friendship,” “distant,” and “tense”. Several factors appeared to be associated with positive relationships developed between families and staff, including contact with purpose, shared experiences, and issues of trust. Families also reported a number of benefits from developing positive relationships with staff.

This qualitative study describes expectations, concerns, and needs regarding long-term care (LTC) homes and home care services of 12 older lesbian and gay couples living in Canada. Our findings reflect four major themes: discrimination, identity, expenditure of energy, and nuanced care. Discrimination involved concerns about covert discrimination; loss of social buffers as one ages; and diminished ability to advocate for oneself and one's partner. Identity involved anticipated risk over disclosing one's sexual identity; the importance of being identified within a coupled relationship; and the importance of access to reference groups of other gay seniors. We conclude that partners were burdened by the emotional effort expended to hide parts of their identity, assess their environments for discrimination, and to placate others. Nuanced care involved a mutual level of comfort experienced by participants and their health care providers. These themes inform understandings of LTC homes and home care services for lesbian and gay older couples.

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