Rehabilitative care for children with limb difference often includes the provision and use of an artificial (or prosthetic) limb. Of key influence in this process is how parents experience and respond to their child's limb difference and prosthesis use. However, research on this is lacking. Therefore, this study aimed to explore the experiences of parenting a child with limb difference who had been provided with an artificial limb. Design: Semi-structured interviews took place with seven parents. Interview data was recorded, transcribed and analysed using interpretative phenomenological analysis. Results: The analysis identified four themes: (1) managing the initial emotional experience through the development of coping resources; (2) opportunities through prosthesis use and its relationship with 'normality'; (3) managing and making sense of social reactions toward their child; (4) the intrinsic role of support: developing a collective connection and enabling shared knowledge. Conclusions: The study highlighted salient aspects to parents' experiences and sense-making that can inform clinical support. Emotional support, the management of social responses, and the holistic coordination of healthcare support with peer support networks are discussed. Healthcare professionals involved in the prosthetic rehabilitation process should look to explore these meanings to help support the management of the child's prosthesis use.

Background: Parents of children with chronic health conditions can face many challenges. The Tree of Life narrative therapy group intervention aims to connect parents with their skills and resources before collectively exploring the ‘storms’ (challenges) they face. A narrative-informed evaluation aimed to story the parents’ experiences of attending the group. Methods: Seven parents attended a Tree of Life group intervention and then participated in a narrative-informed group interview to generate stories regarding their experience of the group. The interview was recorded with consent and later transcribed. Results: A thematic analysis was undertaken and highlighted that the group offered parents a ‘safe place to stand’ to talk about difficulties; a different perspective on their situation; connection with the skills of other parents; new ideas to introduce more independence to their child; and togetherness within the ‘storms’ (challenges). Conclusions: The narrative-informed evaluation offered opportunities to further thicken parents’ preferred identity stories whilst also contributing to the evidence base of narrative-informed group interventions for parents.

This article shares the rich experiences of those involved in our first virtual Tree of Life group. We hope their ideas will offer clinicians a safe place to stand amidst the Coronavirus storms.

No abstract

No abstract