The most frequently observed behaviors were irregular respirations, pink color, postured flexion of the extremities, immature light sleep, and drowsiness. Least frequently observed behaviors consisted of burps, bowel movement, grunting, smooth motor movements, cooing, and speech movement. Regression analysis illustrated that the pattern of behavior was significantly similar week to week.
Food insecurity (FI), the limited or uncertain availability of nutritionally adequate and safe food, negatively affects children’s health. Households (HH) of children with hemophilia (CWH) may be at increased risk for FI due to hemophilia‐related expenses.
Objective: To quantify FI and its determinants among HH of CWH.
Methods: FI and child health status, recorded at annual hemophilia visits between 5/2012 and 6/2013, were obtained by chart review. Descriptive statistics summarized participant characteristics. ANOVA and multivariable logistic regression (MLR) quantified associations with FI.
Results: Data were obtained for 54 males aged 1 mo to 17 y. By severity, 29.6% had mild, 22.2% moderate, and 48.1% severe hemophilia. Prevalence of FI was 20.4% overall and 18.8% among HH of children with mild, moderate (8.3%), and severe disease (26.9%). FI was concentrated among HH enrolled in public (39.1%) vs. private insurance (6.5%, p<0.05). HH with >1 CWH were at higher risk for FI (71.4%) vs. others (12.8%; p<0.002). MLR revealed that having >1 CWH (OR=15.29, 95% CI: 1.96‐119.43, p<0.009) and public insurance (OR=7.62, 95% CI: 1.22‐ 47.54, p<0.03) were associated with higher odds of FI.
Conclusions: HH of CWH are at risk for FI, especially HH with public insurance and/or >1 CWH. Screening for FI in specialty clinics is a promising approach to identify and target resources to address FI among HH of CWH.
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