What is already known on this subject? Sickle cell disease (SCD) has an impact on all aspects of a person's life (Edwards et al., 2005, International Journal of Behavioral Medicine, 12, 171). Strickland , Jackson, Gilead, McGuire, and Quarles (2001, Journal of the National Black Nurses' Association, 12, 36) suggest that one of the crucial factors in determining quality of life for those with SCD is the severity, timing and number of painful sickling episodes. Exacerbations of pain are also cited as explanation for the majority of medical contacts for people with SCD (McClish et al., 2009, Pain, 145, 246). The majority of research focuses on the consequences of pain in terms of handicap, and its impact on emotional well-being, relationships and the need for medication/hospital treatment (Booker et al., 2006, Chronic Illness, 2, 39; Weisberg et al., 2013, Journal of Hospital Medicine, 8, 42) rather than how SCD patients experience and understand their pain. However, the actual nature of pain experience in SCD is poorly understood and sub-optimally managed (Booker et al., 2006; Taylor et al., 2010, Journal of Pain and Symptom Management, 40, 416). What does this study add? The experience of SCD pain is indescribable without the use of analogy, as it is unbearable, agonising, constant, inescapable and without limit. Difficulty describing pain creates a perception of being misunderstood or minimized by professionals. Personification of pain is often employed by patients to attempt to form a relationship with pain. Current pain measures used in clinical practice are inadequate at capturing the acute and chronic SCD pain experience.

Accessible Summary People with learning disabilities talked about what it was like to move out of hospital. People talked about how important their relationships with other people were. People wanted to feel comfortable with new members of staff so that they felt safe and happy in their new home. People talked about how moving out of hospital changed how they thought about themselves. When they were in hospital, people sometimes thought that they were “bad.” But after they moved, some people started to think that they were a different person. It is important for everyone to think about how they talk to people when they are in hospital, and when they have moved out. People can do really well living in their own home, rather than in hospital. Abstract BackgroundPeople with learning disabilities are moving out of hospitals as part of the Transforming Care programme, although thus far their views on how they have experienced this have not been researched. Materials and MethodsA qualitative design was used to explore how people with learning disabilities experienced moving as part of Transforming Care. Eleven people took part in semi‐structured interviews; they were supported by Key Support People (n = 9) who knew them well. A social constructionist Grounded Theory approach was used in analysis. Results and DiscussionPeople reported that their relationships with other people, including friends, family and staff, played a significant role in how they experienced the move. Moving was also an opportunity for people to shift their ideas about who they were as a person and opened up a wider array of stories about their identity. ConclusionsA number of recommendations are discussed, relevant for staff working in this field to support positive transitions out of hospital.

Women undergoing fertility treatment demonstrate their resilience through a variety of actions that enable them to continue to pursue their pregnancy goal. Clinical staff should be mindful of their clients' need to withdraw from the treatment cycle and offer support to enable them to do this.

Qualitative research continues to rely heavily on verbal language from solely the participant, which often omits the lived experiences of many people across a range of populations. This paper describes adaptations to an established research methodology, dyadic interviewing, which aims to open up possibilities of hearing unheard voices. Namely, we present an extension to the dyadic interview method as outlined by Caldwell (2014), in which the clinical systemic technique of Internalised Other interviewing is used to further focus in on the perspective of the participant. This method has been used by the authors in a research project with people with intellectual disabilities (Head et al., 2018), which gave people who may not have otherwise participated an opportunity to have their voices heard. A critical analysis of the use of the method is presented, with practical advice on its use. The authors argue that the methodology could be used with a number of populations in clinical and social research.

Given the nature of the discipline, it might be assumed that clinical psychology is an ethical profession, within which effective ethical decision-making is integral. How then, does this ethical decision-making occur? This paper describes a systematic review of empirical research addressing this question. The paucity of evidence related to this question meant that the scope was broadened to include other professions who deliver talking therapies. This review could support reflective practice about what may be taken into account when making ethical decisions and highlight areas for future research. Using academic search databases, original research articles were identified from peer-reviewed journals. Articles using qualitative ( n = 3), quantitative ( n = 8) and mixed methods ( n = 2) were included. Two theoretical models of aspects of ethical decision-making were identified. Areas of agreement and debate are described in relation to factors linked to the professional, which impacted ethical decision-making. Factors relating to ethical dilemmas, which impacted ethical decision-making, are discussed. Articles were appraised by two independent raters, using quality assessment criteria, which suggested areas of methodological strengths and weaknesses. Comparison and synthesis of results revealed that the research did not generally pertain to current clinical practice of talking therapies or the particular socio-political context of the UK healthcare system. There was limited research into ethical decision-making amongst specific professions, including clinical psychology. Generalisability was limited due to methodological issues, indicating avenues for future research.

This project aimed to investigate attitudes towards research and perceived research culture among trainee clinical psychologists across the UK. This was achieved by exploring factors such as: research training environment, research attitudes, research self-efficacy, and professional identity. An online survey was completed by 44 trainee clinical psychologists who started training in 2020. The findings showed that UK trainee clinical psychologists did not perceive a strong research training environment, they did not hold strong attitudes towards research, or have positive research self-efficacy as indicated in previous research. It is of some concern that the role of researcher, as part of the identity of a clinical psychologist, was not seen to be instrumental by most trainees. Important differences in the results of this research compared to previous published literature are discussed, in addition to a consideration of the implications of these findings for training and the post-qualification role of clinical psychologists.

The above artwork is our Making Positive Moves logo, and was designed by Joan, who inspired the project, and continues to be one of our expert by experience collaborators.The authors argue that it is both possible and important for clinical psychologists to lead research grants, noting the potential to influence national policy, guidelines and work alongside experts by experience to change the research environment. The authors go on to outline their research journeys, noting the key experiences that sparked their interest to take research further. The process of applying for and ultimately successfully securing a National Institute of Health Research (NIHR), Research for Patient Benefit (RfPB) grant is outlined, and key learnings noted.

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