No abstract

Expectations appear substantially different for patient versus sibling campers. The camping experience appeared to impact these groups differently, with patient campers impacted in ways not experienced by sibling campers.

What most distinguished parents who refused from those who accepted randomization was not their knowledge and information about randomized clinical trials. By far, the majority of QIs that accurately predicted acceptors and refusers involved parents' beliefs, values, and perceptions. Further research is needed to determine interventions that may enable the healthcare team to provide information and decisional support most effectively to improve the informed consent process.

Bone marra) transplantation is a reZatively new and aggressive procedure used i n t h e treatment o f leukemia, a p t a s t i c anemia, and severe i m n o d e f i c i e n t diseases. This paper addresses s p e c i f i c a l l y t h e psychological impact of the procedure on t h e r e t a t i o n s h i p betueen the donor and the recipient. The donor-patient relationship i s viewed i n the context of the family system, o i t h particular emphasis on t h e sibting retationships. Cases are presented t o demonstrate some s a l i e n t aspects of t h e retationship: devetopment a l tasks, sexuat i d e n t i t y , tuinship and f d t y r o t e alteration.Concern i s expressed f o r potentiat long -tern psychotogicat sequelae in t h e patient, donor, and other family members.