On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0–18 years with osteogenesis imperfecta.
Research Objectives To present the results from a patient satisfaction survey and compare patient satisfaction with in-person to telehealth delivery of pediatric physical and occupational therapy. Design Retrospective cohort study. Setting Outpatient pediatric rehabilitation services from a specialized New York City hospital. Participants All pediatric patients, 1 month to 21 years old, receiving outpatient rehabilitation services from this hospital were sent a Q-Review survey to rate level of satisfaction with the care received. Pediatric patients, 1 month to 21 years old, who received outpatient physical and/or occupational therapy and completed the survey were included. 173 survey responses were included. Interventions During COVID-19 pediatric rehabilitation rapidly shifted from in-person to telehealth sessions. Main Outcome Measures A retrospective review of survey data from April 2 to December 16, 2019 for 2 types of visits: in-person initial evaluation, in-person follow up and from April 2 to December 16, 2020 for 2 types of visits: telehealth initial evaluation, and telehealth follow up. Items were scored on a Likert scale 1-5. A score of 5 indicates "most satisfied" and 1 indicates "least satisfied." One exception was the net promoter score question, "How likely are you to refer this hospital to your friends and family?" was graded on a 10 point scale. Responders comments were collected and reviewed. Since this was a pediatric population, the parent often responded to the survey. Results A total sample of 173 survey responses for pediatric physical and occupational therapy were included. Survey collection was as follows: 46 in-person evaluation surveys, 17 telehealth evaluation surveys, 29 in-person follow up surveys, and 81 telehealth follow-up surveys. 139 surveys were for physical therapy and 34 for occupational therapy. Mean responses for in-person evaluations ranged from 4.3 - 4.8 and 4.6 - 5.0 for telehealth evaluations, indicating a trend in higher satisfaction levels with telehealth evaluations. For in-person follow ups, the mean responses ranged from 4.9 - 5.0 and 4.9 - 5.0 for telehealth follow ups showing comparable satisfaction levels. Conclusions Telehealth can be effective to provide pediatric physical and occupational therapy while maintaining a high level of patient and parent satisfaction. Author(s) Disclosures None.
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