The data was collected through face-to-face interviews via a "Family Questionnaire Form" which was composed in reference to the literature, and a "Family Burden Assessment Scale". Family Burden Assessment Scale an instrument comprised of 6 sub-factors and 43 items and measured with a five-point Likert-type (1-5) scale. Higher scores represented more severe family burden. The number and percentage distributions were used for characteristic of the children and parent, correlation analysis was used to determine the relationship between the scale sub-factors and characteristics of children with intellectual disability. Results: All the participants were mothers and the mean score of the mothers in the Family Burden Assessment Scale was quite high (4.16±0.53). The sub-factors that have highest score were perceived inadequacy (4.62±0.53), time requirement (4.51±0.51), emotional burden (4.39±0.59). Physical burden (4.278±1.284), emotional burden (4.632±0.515), economic burden (3.942±1.073), social burden (4.130±0.619) and time requirement (4.788±0.219) of family increased with the intellectual disability level of children. Conclusion: The care, treatment and rehabilitation of children with intellectual disability requires more manpower, cost and time than healthy children. Children who attend special education, depend on self-care or have severe intellectual disability, should support from health and psychosocial professionals in care and coping with. This situation is too important for both mother and family health.
Otizm spektrum bozukluğu (OSB), ulusal ve uluslararası çalışmalara ek olarak Milli Eğitim Bakanlığı (MEB), Aile, Çalışma ve Sosyal Hizmetler Bakanlığı, Türk Dil Kurumu (TDK) tarafından farklı yönleri ile ele alınmış; hastalık, bozukluk, farklılık olarak çeşitli şekillerde tanımlanmıştır. OSB, erken çocukluk döneminde ortaya çıkan nörogelişimsel bir bozukluk olan, sosyal iletişim-etkileşim yetersizliği
Objectives: To evaluate the effects of the education program for the management of epilepsy seizures out of the hospital in children who have epilepsy. Methods: Screening was conducted between April-May 2019 at Akdeniz University's electronic databases; CINAHL, Cochrane Library, Sciencedirect, WOS, Wiley, Medline, Ulakbim, Pubmed, YÖK National Thesis Center electronic databases were scanned with the keywords "children", "epilepsy", "prehospital seizure management", "home management of seizure" without year limitation. Results: All in all, 1623 studies were reached. 421 was duplication. Out of the remaining 1399 studies, 180 studies were reached that met the inclusion criteria concerning language-title-summary. Three randomized controlled trials were included in the full text of this study. The first trial aims to increase the first aid knowledge of the parents, the second trial aims to increase the general knowledge and skill level of the parents, the third trial aims to strengthen the medical management of the parents at the time of the seizure. It was stated that education programs for the management of epilepsy seizures were effective in three studies. Conclusion: It is possible to teach the caregivers to the caregivers with correct and timely interventions outside the hospital while eliminating the possible negative situations and improving the quality of life of the family. However, this issue should be studied more with larger groups and with a high level of evidence, and nurses should shed light on education for seizure management to caregivers outside the hospital.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.