Five families
participated in this phenomenological study of the impact of thalassemia, a serious
hereditary blood disease, on the life of the affected teenager and his or her parents.
Family members were interviewed separately for a maximum of one hour each. They shared
their views regarding the impact of the illness on their everyday lives, on their
relationships with each other, on their relationships with their friends, and on their
perception of themselves and the future. Their coping and adaptive processes are
identified.
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