Children with autism spectrum disorder (ASD) and their families have represented a fragile population on which the extreme circumstances of the COVID-19 outbreak may have doubly impaired. Interruption of therapeutical interventions delivered in-person and routine disruption constituted some of the main challenges they had to face. This study investigated the impact of the COVID-19 lockdown on adaptive functioning, behavioral problems, and repetitive behaviors of children with ASD. In a sample of 85 Italian ASD children (mean age 7 years old; 68 males, 17 females), through a comparison with a baseline evaluation performed during the months preceding COVID-19, we evaluated whether after the compulsory home confinement any improvement or worsening was reported by parents of ASD individuals using standardized instruments (Adaptive Behavior Assessment System (Second Edition), Achenbach Child Behavior Checklist, Repetitive Behavior Scale-Revised). No significant worsening in the adaptive functioning, problematic, and repetitive behaviors emerged after the compulsory home confinement. Within the schooler children, clinical stability was found in reference to both adaptive skills and behavioral aspects, whereas within preschoolers, a significant improvement in adaptive skills emerged and was related to the subsistence of web-delivered intervention, parental work continuance, and online support during the lockdown.
Parenting a child with a disability, such as neurodevelopmental disorders and genetic syndromes, implies a high level of stress. During the COVID-19 outbreak—as a period implying additional challenges—few studies have specifically investigated caregivers’ distress among neurodevelopmental disabilities. The objective of the study is to investigate whether during the COVID-19 pandemic, the level of parental stress differs between four disability groups including neurodevelopmental disorders (autism spectrum disorder (ASD), attention deficit and hyperactivity disorder (ADHD)) and genetic syndromes (Rett syndrome (RTT), Sotos syndrome (SS)) in comparison to families with typical development offspring (TD). In total, 220 Italian parents of children affected by neurodevelopmental disabilities (74 ASD, 51 ADHD, 34 SS, 21 RTT, 40 TD; age M 9.4 ± SD 4.2) underwent a standardized evaluation for stress related to parenting through the self-report questionnaire, Parental Stress Index-Short Form (PSI-SF). The main findings show greater levels of parental stress—mainly linked to child behavioral characteristics rather than parental sense of competence—in parents of children affected by a disability in comparison to children with typical development. This study highlights the need to support not only individuals with special needs but also their own caregivers: core figures in the management and outcome of children disorders.
The outbreak of COVID-19 severely impaired health worldwide, and the subsequent emergency measures established by governments in relation to home confinement implicated indirect consequences on wellbeing and everyday life scheduling for children and adults.Specifically, the Italian Government imposed home-confinement for all residents from March 9th 2020 to May 4th 2020. Most of the work activities were compulsorily interrupted except for those considered as essential (i.e. doctors, nurses, employed in supermarkets). Home exiting was permitted only for indispensable and critical requirements.Children with special care needs and their families, represented a fragile population on which the extreme circumstances due to COVID-19 could have doubly impaired (Asbury et al., 2020). Interruption of school activities and therapeutical interventions delivered in-person, in addition to the reduced possibility to leave homes and subsequent social isolation, constituted the main challenges for children with neurodevelopmental disorders including Autism Spectrum Disorder (ASD) and genetic conditions such as Sotos Syndrome.ASD is an early-onset and lifelong neurodevelopmental condition characterized by social communication and social skill deficits, restricted interests and repetitive behaviors (Diagnostic and Statistical
This study investigated the impact of lockdown due to COVID-19 pandemic on the adaptive functioning, problematic and repetitive behaviors of an Italian sample of preschoolers and schoolers with Autism Spectrum Disorder. We evaluated whether after the compulsory home confinement, in comparison to a baseline evaluation performed during the months preceding COVID-19, any improvement or worsening was reported by parents of ASD individuals using standardized instruments.No significant worsening in the areas explored emerged after the lockdown. Within the older participants, a clinical stability was found concerning both adaptive skills and behavioral aspects. Whereas, within preschoolers a significant improvement in adaptive skills emerged and was related to the subsistence of web delivered intervention, parental work persistency and online support during lockdown.
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