RESUMO Objetivo: investigar a continuidade do cuidado de recém-nascidos pré-termos egressos da unidade neonatal na perspectiva dos familiares. Método: estudo exploratório qualitativo, fundamentado na perspectiva conceitual da continuidade do cuidado, desenvolvido com 16 familiares de recém-nascidos pré-termo egressos de unidade neonatal de um hospital universitário da capital do estado de Mato Grosso, Brasil. A coleta dos dados ocorreu de agosto a novembro de 2019, por meio de entrevistas semiestruturadas realizadas nas residências dos participantes e, posteriormente, submetidas à técnica de análise de conteúdo. Resultados: os 16 familiares relataram suas perspectivas sobre a continuidade do cuidado de recém-nascidos pré-termos egressos da unidade neonatal, revelando fragilidade informacional no âmbito da atenção básica e outros serviços de saúde; relação satisfatória por meio do vínculo com o serviço em que ocorreu o nascimento da criança, que se materializa pela adesão ao ambulatório de seguimento; e dificuldade de acesso a atendimentos, ausência de articulação e comunicação entre os diferentes níveis de atenção, comprometendo a efetivação da referência e contrarreferência entre os serviços. Conclusão: a continuidade do cuidado após a alta é agenciada pela própria família, pelo seu protagonismo e autonomia ao cuidarem da criança egressa da unidade neonatal. Independentemente de os serviços de saúde atuarem de forma articulada, as famílias buscam espaços de saúde, informações e fontes de apoio para subsidiar o cuidado.
Objective: to investigate the continuity of care of preterm newborns discharged from the neonatal unit from the perspective of family members. Method: qualitative exploratory study, based on the conceptual perspective of continuity of care, developed with 16 relatives of preterm newborns discharged from a neonatal unit of a university hospital in the state capital of Mato Grosso, Brazil. Data collection occurred from August to November 2019, through semi-structured interviews conducted in the participants' homes and subsequently submitted to the content analysis technique. Results: the 16 family members reported their perspectives on the continuity of care for preterm newborns who graduated from the neonatal unit, revealing informational fragility in the scope of primary care and other health services; a satisfactory relationship through the link with the service in which the child was born, which is materialized by the access to the follow-up outpatient clinic; and difficulty access to care, lack of articulation and communication between the different levels of care, compromising the implementation of the reference and counter-reference between the services. Conclusion: the continuity of care after discharge is brokered by the family itself, due to its protagonism and autonomy when caring for the child in the neonatal unit. Regardless of whether health services act in an articulated way, families seek health spaces, information and sources of support to support care.
Objective: to understand the experience of family members in the care of preterm newborns discharged from the Neonatal Intensive Care Unit. Methods: qualitative study, developed with 16 family members of preterm newborns discharged from a neonatal unit through semi-structured interviews. Data were submitted to thematic content analysis. Results: three categories were listed: Family members' rearrangements in the care of the preterm newborn at home; recognizing the specific care needs of the preterm child; and care in the face of complications and sequelae resulting from prematurity. Conclusion: family members recognize that the preterm newborn requires differentiated care and, therefore, experience a reorganization of their daily lives to promote the care of the child after discharge from the neonatal unit. Contributions to practice: this study points out the relevance of the nurse's work with families in neonatal units by strengthening family skills so that they can undertake care, so that it can be offered safely and meet the health demands that arise on a daily basis at home, in addition to guiding them about the need for monitoring the child after discharge.
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