Introduction (comprising background and problem statement):Carers have valuable information that can help the delivery of health care, however, it is often underutilised. There is limited published evidence concerning the effectiveness of carer engagement on patient outcomes. The Clinical Excellence Commission Top 5 Program (the program) is addressing this gap.Short description of practice and context: Patient Based Care (PBC) refers to a model of care focussed on the patients, built on genuine partnerships between Health Care Workers (HCWs) and patients. The program uses up to five personal tips from carers to promote coordination and continuity of care that meets mental and physical health needs for the care recipient, between primary, community and hospital based care. Description of change implemented:The program enables genuine partnerships between HCWs, carers and care recipients to formally record and share the tips and management strategies. A standardised form enables continuity by staying with the care recipient through all care transition.The program aims to integrate health and social care services by creating awareness of dementia and promoting PBC across all health settings. Following success in the hospital setting, the program is now being integrated into Ambulance, primary, community and homecare settings to ensure care continuity and collaboration.Objective of the change/improvement realised: The program has met its objectives by demonstrating patient and staff experience, clinical outcome and operational benefits. The program has successfully demonstrated an increase in carer satisfaction, enablement of the care recipient to receive personalised care and support as well as HCWs feeling better equipped to meet the unique needs of the person with dementia.
PurposeTo describe and compare the attitudes of family physicians and internists in training and practice regarding perceived self-efficacy in delivering quality end-of-life care.MethodsWe created a tool to measure self-efficacy for this cross-sectional survey. Using a five-point Likert scale, we measured physician's attitudes and perceptions of their abilities. An on-line self-administered survey was placed on a secure site, accessible to those selected to participate in the study. All faculty and residents in the departments of Family and Community Medicine and Internal Medicine were considered prospective participants and emailed accordingly (n =340). Measures were self-reported perceptions within four end-of-life care domains (physician's own ability - general, physician's own ability - symptom treatment, crucial areas of training and effective training modalities).ResultsOf the 78 respondents (23% response rate), the mean age was 41-42 (range 26-67) and the majority were female (53%). Fifty-seven percent of the respondents had completed residency at the time of participation and approximately two-thirds were board certified. The majority of respondents were in the field of internal medicine (61%). Overall, participants felt fairly confident in their ability to help patients and their families with end-of-life issues and care and found most methods of end-of-life training useful.DiscussionDespite educational initiatives and recommendations by various oversight, evaluation and licensing committees, paucity of end-of-life training pervades not only undergraduate medical education, but also residency training and beyond. Based on our review of the literature, our results appears to convey a disconnect between physician's perceived abilities in end-of-life care and what may be happening in the field. This study helps to describe practitioners' personal attitudes regarding their ability to deliver end-of-life care as a measure of self-efficacy and how this measure varies by demographic factors. In addition, it lends some insight into the practitioners' needs and priorities with respect to end-of-life education and training.
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