measures of physical health and family communication from a community sample of 171 parents/caretakers. Discussion: Findings suggest that the SNRS-11 is a promising measure for efficiently assessing current stress in adolescents and adults.
Objective: To equip clinicians with recommendations specific to concerns related to the novel coronavirus disease 2019 (COVID-19), which impact the physical, emotional, and social health of youth with headache disorders. Background: COVID-19 has affected societies on a global scale including children and youth with chronic headache disorders. Many concerns are predicted to arise in the 2020-2021 school year, whether classes are conducted in-person or virtually. Methods: Clinical impressions were combined with a review of the literature, although limited due to the recent nature of this issue. Results: We describe recommendations to support caregivers and youth as they face changes expected with the return to school in the fall of 2020. Conclusion: Although there are significant concerns for caregivers and youth with migraine given the context of changes related to the pandemic, there are many recommendations that can help minimize exacerbations of the physical, emotional, and social health of youth with chronic migraine.
Though chronic migraine is actually common in adolescents, living with constant headache can be isolating for both patients and their families. As an outgrowth of clinical care, we developed the Miles for Migraine Youth Camp, a recurring 1‐day event for adolescents with chronic headache and their parents. Migraine Camp was developed to provide expanded headache education, teach coping strategies for living with chronic pain, and encourage development of a supportive community for adolescents living with chronic headache disorders and their families. The creation and curriculum of the Camps at the University of California San Francisco and Children's Hospital of Philadelphia are described in this manuscript, along with patient and caregiver feedback. Overall, feedback was positive. Teens reported feeling less isolated and more prepared to cope with headaches using new strategies. Both patients and caregivers consistently described benefit from connecting with others who experience similar challenges. The Migraine Camp teams at both institutions found it feasible to conduct the Camps 1‐2 times per year using existing resources, but noted that to scale it to a more regular event additional administrative and/or volunteer support would be needed. In summary, the experience has been positive for patients, caregivers, and staff, and we hope that this manuscript can serve as a “how to” model for similar events at other institutions.
Although many valid pain-related assessment instruments and interventions
exist, little is known about which are actually utilized in practice and the
factors that contribute to pediatric psychologist’s decisions about
their use. The aim of this survey study was to present a summary of current
clinical practice among pediatric psychologists in the area of pediatric pain
and to identify the needs and possible resources that would enable practitioners
to better implement evidence-based assessments and interventions. To accomplish
this aim, the Pain Special Interest Group of the Society of Pediatric Psychology
(SPP) constructed an online survey that was sent electronically to current
members of the SPP list serve. Results indicated the majority of participants
are guided by a theoretical model and are using evidence-based assessments and
interventions, although they are not always familiar with the literature
supporting their use. Providers noted evidence-based pain intervention is
facilitated by assessment tools, intervention resources, and appreciation of
pain interventions by multidisciplinary team members. Barriers are both
logistical (clinic space and time constraints) and knowledge-based (lack of
familiarity with assessments/interventions). Thus, while pediatric psychologists
are progressing towards better translation of research to practice, continued
educational efforts and communication among practitioners about available
resources are warranted.
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