Background Caring for children living with life-threatening and life-limiting illnesses can be challenging. Parents’ roles as the main caregivers can be complex with extensive responsibilities. The experiences of family caregivers can provide key insights into the provision of home-based Pediatric Palliative Care (PPC) for seriously ill children. This study is aimed at exploring the experiences of family caregivers of children diagnosed with cancer while receiving home-based PPC. Methods This was a qualitative study. This study used semi-structured interviews which were audio-recorded with family caregivers of twelve children diagnosed with cancer who had received home-based PPC. The interviews were transcribed verbatim. The data were analyzed using qualitative content analysis. The reporting of the study was based on the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist. Results Three main themes emerged: (1) The implementation of home-based PPC; (2) The benefits of home-based PPC; and (3) The family caregivers’ hopes of the home-based PPC service and their impressions of home-based PPC. The implementation of home-based PPC described the experiences of family caregivers in receiving home-based PPC provided by nurses with particular attention to the bio-psychosocial-spiritual aspects. Family caregivers experienced several benefits from the home-based PCC service, where holistic care was provided for both the patient and the family. Family caregivers shared their hopes prior to receiving support from competent health care professionals to care for their sick child at home and improve the child's quality of life. They confirmed that these hopes were fulfilled through the home-based PPC service delivered by Rachel House. Conclusions Home-based PPC provides several benefits with a positive impact for both the children diagnosed with cancer as well as their families. Nurses involved in the home-based PPC service provide holistic care with a family-centered approach. We believe that children with terminal illnesses and their families need and deserve home-based PPC during difficult times.
The notion of reflective practice has been considered important in healthcare professionals’ practice. In nursing, particularly in developed countries such as the United Kingdom, Canada, Australia, it has been set as a required competence for registration. Some action has been taken to support the achievement of competent and reflective practitioners, including embedding reflection in the nursing pre-registration education curriculum. In the past twenty years, there has been focus on using art-based initiatives to help student nurses to reflect on their clinical experience. Amongst the art forms, poetry has been used as a reflective tool. Many studies found that poetry could be helpful for developing students’ reflective skills. This literature review was conducted to identify the feasibility and promising benefit of using poetry to increase student nurses’ reflective skills. A comprehensive search of the literature and integrative review were undertaken for reviewing and discussing the evidence-based literature that supports the using of poetry as a reflective tool. A critical and narrative approach was undertaken for 16 relevant literature related to the importance of reflection in practice, the promising potential to enhance students’ reflective skills during academic education, and how poetry might promote students’ reflective skills. The literature review showed that using poetry in education have been carried out, and have yielded positive results. It is promising to note that the development of reflective practice, as required to be an attribute of a registered nurse, could be stimulated and achieved by the employment of poetry as a reflective tool in clinical education. The literature review also demostrated that using poetry as a reflective tool in nursing education is both feasible and worthwhile. Therefore, it is proven that using poetry as a means of reflection in an education setting is beneficial and valuable.
ABSTRAK Kejadian henti nafas dan henti jantung di komunitas erat hubungannya dengan epidemiologi penyakit jantung. Prevalensi penyakit jantung di Indonesia adalah 15 dari 1000 orang dari data Kementerian Kesehatan Republik Indonesia tahun 2019 yang meningkatkan risiko kejadian henti jantung dan henti nafas yang dapat terjadi pada tempat-tempat yang tidak dapat diprediksi. Remaja sebagai anggota keluarga dan komunitas masyarakat harus memiliki kemampuan dasar dalam memberikan bantuan hidup dasar (BHD) pada yang membutuhkan agar dapat mengurangi komplikasi kematian akibat penyakit jantung. Tujuan kegiatan pelatihan BHD yang dilakukan di Sekolah Menengah Atas Negeri (SMAN) 34 Jakarta adalah (1) memberikan edukasi kesehatan mengenai penyakit jantung kepada remaja, (2) mengedukasi peran remaja di kehidupan sehari-hari untuk mengurangi resiko penyakit jantung dari dini, dan (3) memberikan pelatihan bantuan hidup dasar kepada remaja. Kegiatan pengabdian kepada masyarakat (PKM) dilakukan dalam bentuk pelatihan BHD di SMAN 34 Jakarta. Kegiatan dimulai dengan sesi pemberian edukasi kesehatan dan dilanjutkan dengan demonstrasi cara memberikan BHD. Pelatihan BHD ini bermanfaat bagi komunitas, khususnya remaja. Tingkat pengetahuan peserta meningkat signifikan dengan membandingkan hasil pre-test dengan post-test (p<.000). Selain itu, peserta mampu memberikan BHD dengan baik setelah pelatihan diberikan. Edukasi mengenai penyakit jantung dan pelatihan BHD pada remaja adalah hal yang penting untuk mencegah penyakit jantung dan komplikasinya. Kata kunci: bantuan hidup dasar, remaja, kardiovaskuler ABSTRACT Cardiac arrest in the community is related to the prevalence of heart disease. The prevalence of heart disease in Indonesia is 15 out of 1000 people from Kementerian Kesehatan Republik Indonesia in 2019 which elevates the risk of cardiac arrest in unpredictable places. Adolescents as a member of family and community must be capable of performing basic life support (BLS) to reduce the mortality as result of heart disease. The purposes of this community service were to (1) deliver health education about heart disease to adolescents, (2) educate the adolescents about how to reduce the risk of heart disease, and (3) train the adolescents to perform basic life support. The community service of BLS training was conducted in senior high school (SMAN) 34 Jakarta. The trainer delivered theoretical knowledge about basic life support. After this session, the trainer and instructors demonstrated the skill of performing BLS. The adolescents (students) then asked to redemonstrate the skill until they could take on the BLS well. This BLS training was beneficial for the community especially in adolescents. The knowledge of the participants was significantly increasing in the post-test compared to pre-test (p<.000). Furthermore, the adolescents could perform the BLS well after the training. Heart disease education and BLS training are important in adolescence to prevent cardiovascular disease and its complications. Keywords: basic life support, adolescents, cardiovascular
Aims: Home-based pediatric palliative care (HBPPC) seemingly would be a promising approach to support families whose have and take care for children with life-threatening disease (LTD) and life-limiting disease (LLD) in a holistic manner. PPC is not only provided in the hospital, but also delivered in the outpatient care; community settings, including hospice and patients’ homes. The aim of this study is to delineate findings from previous studies about home-based pediatric palliative care (HBPPC) for gaining information about the benefits of implementing HBPPC. Methods: Several search strategies, mainly using electronic databases, were employed to gain a solid body of literature constructing this article. The inclusion criteria of the studies were English text, full text, and children as the specific investigated population which were published between 2014 until 2022. We used the Scale for the Assessment of Narrative Review Articles (SANRA) for appraising and establishing a robust body of literature regarding the topic and finally there were 9 studies included in this literature review. Results: From reviewing the available literature, it is found that home-based PPC may be an ideal approach to care for children with LTD and LLD and their families. By employing home-based PPC, both patient and caregiver may gain several benefits to manage physical, psychosocial, and emotional issues, which enhance the quality of life (QoL) for both the patients and their parents. Conclusions: The implementation of HBPPC may improve the QoL of children with LTD and LLD, as well as their families.
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