RESUMOObjetivo: compreender as experiências vivenciadas por cuidadores familiares de pacientes elegíveis para cuidados paliativos. Método: estudo qualitativo, descritivo e exploratório, fundamentado na fenomenologia social. Entrevistaram-se 20 cuidadores cadastrados na atenção primária à saúde. Realizou-se a coleta de dados por meio de entrevista fenomenológica e interpretada através das fases de descrição, redução e compreensão. utilizou-se a técnica de Análise de Conteúdo na modalidade Análise Ttemática categorial, com o auxílio do programa ATLAS TI 7. Resultados: identificaram-se as categorias: Redes de apoio ao familiar cuidador; Dinâmicas e rotinas diárias de cuidados prestados pelo familiar; Sobrecargas físicas e mentais do cuidador familiar. Conclusão: vivenciaram-se pelos cuidadores importantes mudanças em suas rotinas diárias, o que acabou por ocasionar uma sobrecarga física e mental aos mesmos, levando à necessidade de redes de apoio formais e informais para estes cuidados. Observou-se a inexistência de uma rede de apoio formal aos cuidadores e a falta de treinamento e orientação suficientes para realização do cuidado junto a seu familiar. Ressalta-se a importância da atuação dos equipamentos da APS, por meio do apoio às necessidades biopsicossociais destes cuidadores. Descritores: Atenção Primária à Saúde; Cuidados Paliativos; Cuidadores; Apoio Social; Sistemas de Apoio Psicossocial; Percepção.ABSTRACT Objective: to understand the experiences by the family caregivers of patients eligible for palliative care. Method: this is a qualitative, descriptive and exploratory study, based on social phenomenology. There were 20 caregivers interviewed who were enrolled in primary health care in a city of Minas Gerais, Brazil. Data collection was performed through a phenomenological interview and interpreted through the description, reduction and understanding phases. As for the analysis of the data, the categorical thematic modality was used, with the help of the program ATLAS TI 7. Results: the following categories were identified: Support networks for the caregiver family; Dynamics and daily routines of family care; Physical and mental overloads of the family caregiver. Conclusion: The caregivers experienced important changes in their daily routines, which led to a physical and mental overload, leading to the need for formal and informal support networks for these care. There was a lack of a formal support network for caregivers and a lack of adequate training and guidance for the care of the family member. The importance of the performance of PHC equipment is highlighted, by supporting the biopsychosocial needs of these caregivers. Descriptors: Health Primary Care; Palliative Care; Caregivers; Social Support; Psychosocial Support Systems; Perception. RESUMEN Objetivo: comprender las experiencias vividas por cuidadores familiares de pacientes elegibles para cuidados paliativos. Método: estudio cualitativo, descriptivo y exploratorio, fundamentado en la fenomenología social. Fueron entrevistados 20 cuidadores registrados en la atención primaria a la salud de un municipio de Minas Gerais, Brasil. La recolección de datos fue realizada por medio de entrevista fenomenológica e interpretada a través de las fases de descripción, reducción y comprensión. En el análisis de los datos, se utilizó la modalidad temática categorial, con el auxilio del programa ATLAS TI 7. Resultados: fueron identificadas las categorías: Redes de apoyo al familiar cuidador; Dinámicas y rutinas diarias de cuidados prestados por el familiar; Sobrecargas físicas y mentales del cuidador familiar. Conclusión: los cuidadores vivieron importantes cambios en sus rutinas diarias, lo que acabó por ocasionar una sobrecarga física y mental a los mismos, llevando a la necesidad de redes de apoyo formales e informales para estos cuidados. Se observaron la inexistencia de una red de apoyo formal a los cuidadores y la falta de entrenamiento y orientación suficientes para realización del cuidado junto a su familiar. Se resalta la importancia de la actuación de los equipamientos de la APS, por medio del apoyo a las necesidades biopsicosociales de estos cuidadores. Descriptores: Atención Primaria a La Salud; Cuidados Paliativos; Cuidadores; Apoyo Social; Sistemas de Apoyo Psicosocial; Percepción.
Summary Introduction: Thrombocytopenia is commonly found in patients living in highly endemic areas for Schistosoma mansoni. Recently, different degrees of liver steatosis have also been associated with low platelet counts worldwide. We investigated the association of platelet counts with hepatosplenic schistosomiasis and with liver steatosis in an area of low prevalence of schistosomiasis in Brazil. Method: Pains, a city in the state of Minas Gerais, Brazil, had a population of 8,307 inhabitants and a schistosomiasis prevalence of 8%. Four micro-areas comprising 1,045 inhabitants were selected for this study. Blood sample was collected and a complete blood count (CBC) was performed. Eighty-seven (87) patients had low platelet counts (group 1 - 8.3%) and 94 volunteers presenting normal CBC were randomized (group 2 - 8.9%). They underwent clinical and ultrasound examinations. Liver steatosis was determined as either present or absent using abdominal ultrasound. A spleen > 12 cm in length, measured by ultrasound (US), was considered to be increased. Data collected were analyzed using SPSS software version 19.0. Results: Twenty-two patients (22/25.3%) in group 1 had liver steatosis compared with 11 volunteers (11.7%) in group 2 (p=0.02). Hepatosplenic schistosomiasis was diagnosed in two patients (p>0.05). Conclusion: Thrombocytopenia was not a good marker of hepatosplenic schistosomiasis mansoni in a low prevalence area in Brazil. Liver steatosis was associated with thrombocytopenia in our study.
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