Background: Recently, awareness of children’s decision making has increased in an effort to enhance palliative care. However, the conceptual framework for decision making among children with cancer remains unclear. Aims: We clarified the decision-making process of children with cancer regarding their care, treatment, and support from family and health care professionals, and identified their needs and preferences. Design: We used metaethnography to conduct a metasynthesis of relevant studies. Data sources: We searched PubMed, EMBASE, PsycINFO, MEDLINE, and CINAHL. This report was prepared in accordance with the PRISMA statement. Results: Of the 7,237 retrieved studies, 27 met our inclusion criteria. Four themes emerged that reflected the decision-making process of children with cancer: (a) facing changes brought about by a health threat, (b) preparing for action, (c) asserting one’s choice, and (d) internal and external influences. Conclusion: Children with cancer initially undergo a decision-making process. Respecting children’s preferences, values, and emotions may help build trusting relationships and promote their decision-making capability. Future research should focus on children’s emotions, cognition, development, and interactions with parents and health care professionals.
Secondhand smoke exposure of non-smoking women during pregnancy is associated with a higher risk of adverse birth outcomes. However, the available evidence regarding the association between expectant mothers’ secondhand smoke exposure and breastfeeding outcomes remains limited. This systematic review aimed to examine associations between secondhand smoke exposure of nonsmoking women during pregnancy with the initiation, prevalence, and duration or breastfeeding compared to women who were breastfeeding and had not been exposed to secondhand smoke. Women who smoked during pregnancy were excluded. We included case-control, cross-sectional, and cohort studies with a comparison control group. Medline CINAHL, and EMBASE were searched in January 2017. After screening 2777 records we included eight prospective cohort studies. The risk of bias assessment tool for non-randomized studies indicated a high risk of outcome assessment blinding. Meta-analysis of two studies established that the odds of discontinuation of any brestfeeding before six months were significantly increased in the secondhand smoke exposed women (pooled odds = 1.07 [95%CI = 1.01, 1.14], two studies, 1382 women). Therefore, secondhand smoke might be associated with discontinuing any breastfeeding before six months. More research is necessary to understand the association between secondhand smoke and the initiation, prevalence and duration of breastfeeding.
Bonding is crucial to perinatal mental health. Despite an extensive body of literature on maternal bonding, few studies have focused on paternal bonding. This scoping review aimed to clarify the current state of the concept of paternal–infant/fetus bonding. The eligibility criteria were drawn from the population concept and context elements to answer the following questions: “what is paternal bonding?” and “what are the constructs of the concept of paternal bonding?” The review comprised 39 studies. Paternal bonding was associated with both positive and negative paternal behavior and thought and may be determined based on fathers’ beliefs and rearing history. Most studies showed that father–child interaction is one of the factors promoting paternal bonding. However, fathers generally felt more distant from their babies post-delivery than mothers. Only a few studies originally defined paternal bonding; most relied on the definitions of maternal bonding. We found different descriptions lacking consensus. Few studies examined the differences between paternal and maternal bonding. No consensus exists on the concept, constructs, and assessment of paternal bonding. The causal relationship between paternal bonding and other variables is unexplored. Future studies should explore fathers’ perspectives and experiences, focusing on the unknown aspects of paternal bonding identified in this review.
IntroductionDespite the potential benefits of effective communication, telling children about cancer, unpredictable and life-threatening conditions is challenging. This study aimed to summarise the communication tools used in cancer communication among children with cancer, caregivers and healthcare professionals.Methods and analysisWe will conduct a scoping review following the preferred reporting items for systematic reviews and meta-analyses extension for scoping reviews checklist. We will search PubMed (including MEDLINE), Embase, CENTRAL, PsycINFO and CINAHL. We will include the qualitative and quantitative studies that reported the communication tools that tell a child diagnosed with cancer about the cancer-related information. We will summarise the communication tools and the impacts of the tools.Ethics and disseminationFormal ethical approval is not required, as primary data will not be collected in this study. The findings of this study will be disseminated through the presentation at the conference and publication in a peer-reviewed journal.
Background : Audiovisual materials for children have been widely used for cancer education; however, the effects of the materials remain unclear. The purpose of this study was to clarify the effects of audiovisual educational interventions for children.Methods : We searched PubMed, EMBASE, CENTRAL, PsycINFO, and CINAHL on 3 September 2018. Randomized controlled trials and quasi-randomized controlled trials that evaluated the audiovisual materials for children with cancer were included to identify the effects of the audiovisual interventions. The results of the analysis were evaluated using the Grade of Recommendation, Assessment, Development and Evaluation to assess the certainty of evidence.Results: From the identified 5,367 studies, we included four reports based on two trials that included 388 children under 18 years old. One trial found that audiovisual educational intervention increased knowledge and self-efficacy (very low certainty of the evidence). The other trial reported that there were no clear differences in perceived stress and health locus of control (very low certainty of the evidence). The result of the meta-analysis indicated that there was no clear difference between the intervention group and the control group for the quality of life (very low certainty of the evidence).Conclusion: Audiovisual interventions might increase knowledge and self-efficacy, but there were no meaningful overall conclusions. Further trials are needed to assess educational interventions used in pediatric cancer treatment. Healthcare professionals should consider whether the materials they are currently using to communicate cancer-related information are sufficient and understandable for children with cancer.Systematic review registration: We registered the protocol to the PROSPERO (Registration: CRD42018110562)
Background: Although communication tools might guide healthcare professionals in communicating with children about cancer, it is unclear what kind of tools are used. This scoping review aimed to map the communication tools used in cancer communication among children with cancer, families, and healthcare professionals. Methods: A comprehensive search using PubMed (including MEDLINE), Embase, CENTRAL, PsycINFO, and CINAHL was conducted on 1 August 2021. We mapped communication tools and their impacts. Results: We included 25 studies (9 experimental studies and 16 feasibility studies) of 29 reports and found 21 communication tools. There was a lack of communication tools that were (1) accessible and validated, (2) designed for healthcare professionals, (3) targeted children, families, and healthcare professionals, and (4) were designed to meet the needs of children and families. Experimental studies showed that the communication tools improved children’s knowledge and psychological outcomes (e.g., health locus of control, quality of life, self-efficacy). Conclusion: We mapped communication tools and identified areas that needed further research, including a lack of tools to guide healthcare professionals and share information with children and families. Further research is needed to develop and evaluate these communication tools. Moreover, it is necessary to investigate how communication tools support children, families, and healthcare professionals.
Introduction: A study conducted in 31 countries described that over 60% of women and children are exposed to SHS outside. Aims: was to explore the association of secondhand smoke (SHS) exposure on maternal and perinatal outcomes in highland settings in Indonesia. Methods: The retrospective cross-sectional survey was used a random sampling method with 52-items of the questionnaire included information of women and infants. This study conducted with the community health center and all seven public health centers in Tomohon city, North Sulawesi, Indonesia, from May to October 2017. The participants were women who had given birth and were exposed to SHS during pregnancy. Their health condition was measured before and after pregnancy, the gestational week at birth, birth weight and height, and perinatal health conditions of the infants. Result: Among 234 women who completed the questionnaire and were included in the analysis. The 97% of household active smokers had a chance to smoke outside the house. Also, approximately 70% of women (162/234) reported exposure to SHS from active household smokers during pregnancy. Maternal secondhand smoke (SHS) exposure during pregnancy was significantly associated with the risk of reduction of birth weight (p = 0.02). Moreover, infants’ birth weight of mothers exposed to SHS outside the house was significantly less than those exposed to SHS only inside (p = 0.03). Conclusion: Further research is required to focus on public smoke-free strategies to protect women and children’s health from SHS in Indonesia.
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