No abstract

The present study investigated the relative contribution of the two components in the simple view of reading to the reading comprehension skills of deaf and hard-of-hearing (DHH) adults in the Netherlands. Eighty DHH adults, aged between 30 and 80 years old, were tested on word reading, reading fluency, vocabulary, and reading comprehension. Regression analyses showed that both decoding skills and vocabulary contributed to the reading comprehension skills of DHH adults, with vocabulary being the strongest predictor. For skilled decoders, the picture was somewhat different with only vocabulary being a predictor of reading comprehension. The results of this study show that the simple view of reading is applicable to DHH adults’ reading comprehension skills: both decoding skills and vocabulary contribute to reading comprehension. Also, as in previous studies on the simple view of reading, as readers become more skilled in the decoding process, vocabulary becomes the only predictor of reading comprehension.

This study was aimed at validating the Individual Recovery Outcomes Counter (I.ROC) for deaf, hard-of-hearing, and tinnitus patients in a mental health care setting. There is a need for an accessible instrument to monitor treatment effects in this population. The I.ROC measures recovery, seeing recovery as a process of experiencing a meaningful life, despite the limitations caused by illness or disability. A total of 84 adults referred to 2 specialist mental health centers for deaf, hard-of-hearing, and tinnitus adults in the Netherlands completed the Dutch version of I.ROC and 3 other instruments. A total of 25 patients refused or did not complete the instruments: 50% of patients using sign language and 18% of patients using spoken language. Participants completed the measures at intake and then every 3 months. In this sample I.ROC demonstrated good internal consistency and convergent validity. Sensitivity to change was good, especially over a period of 6 or 9 months. This study provides preliminary evidence that the I.ROC is a valid instrument measuring recovery for hard-of-hearing and tinnitus patients using spoken language. For deaf patients using sign language, specifically those with limited language skills in spoken and written Dutch, more research is needed.

Usher syndrome is a progressive form of deafblindness, which can have significant psychological consequences. This study aimed to get insight in the perceived impact of Usher syndrome type 2 (USH2) on families with a parent affected by this syndrome, and in the experiences of these families with social, professional, and peer support. Participants were 10 parents with USH2 living in the Netherlands, 10 of their co-parents, and 10 of their children. The parents filled in questionnaires and participated in a semi-structured interview. A photo-elicitation interview and a semi-structured interview were administered to the children. Interviews were transcribed and systematically coded, using thematic and open coding. Parents rated the family’s quality of life in general as satisfactory. Both negative and positive consequences were described of USH2 for the family. Parents without USH2 and their children stated to provide support to the parent with USH2, which was often described as self-evident. Some parents without USH2, however, described their family tasks as a burden. Some parents also reported that psychological problems of the parent with USH2 affected the well-being of other family members. Several parents and some children expressed that the syndrome was hardly discussed within the family. Unfulfilled family support needs were mentioned, a lack of involvement of family members in the professional support, as well as a lack of professional and peer support for children and partners. This study revealed that USH2 in a parent has impact on the entire family. Family-centred approaches are recommended for professionals who support parents with Usher syndrome.

This article describes how young deaf people in the Netherlands between 1809 and 1828 made the transition from living in a school for the Deaf,1 a rather protected community with mostly deaf people and with hearing people who could understand them rather well, to a life in hearing society with mostly hearing people who knew little about deafness. How did they manage to live in that hearing society? The article describes how these deaf people viewed themselves as Deaf persons in a hearing society. The description is based on an analysis of 73 letters written by 35 ex-pupils to the founder of their school, Reverend H. D. Guyot. As it turns out, these deaf ex-pupils managed to live in hearing society remarkably well.