In response to COVID-19, many countries applied measures and restrictions to limit virus spread, including 'lockdowns'. In the UK, these measures included social distancing, selfisolation, work-from-home mandates, and closure of some educational institutions. 1 Health care provision changed rapidly. Services deemed to be providing 'non-urgent care' suspended in-person appointments at home and in hospital and community settings, 2,3 and many implemented telehealth (i.e. remote health care provision using telecommunication technology such as telephone, e-mail, and videoconferencing) to maintain contact with service users.Service disruption adversely impacted children with disability and their families, 4,5 whose health, social care, education, and social support networks were all affected.