ObjectivesWe aimed to develop a reliable and valid measure to assess public beliefs in mythical causes of cancer: the Cancer Awareness Measure–MYthical Causes Scale (CAM-MYCS).Design and settingCancer myth items were generated from a literature review, social media and interviews (n=16). The CAM-MYCS was prepared by reducing items using (a) an online sample (n=527) with exploratory factor analysis and (b) cancer experts with Delhpi methodology (n=13). To assess test–retest reliability and sensitivity to change, students (n=91) completed the CAM-MYCS at baseline and 1 week after exposure to information on lifestyle-related cancer causes or control information. Construct validity was tested by comparing CAM-MYCS scores between cancer experts (n=25) and students (n=91). Factor structure and internal reliability were investigated in a national sample (n=1993).ResultsOut of 42 items generated, 12 were retained based on factor loadings, prevalence of endorsement and expert consensus. CAM-MYCS scores improved (fewer myths endorsed) among students exposed to information on cancer causes compared with the control group (p<0.001) and showed high test–retest reliability (r=0.90, p<0.001). Cancer experts reported higher CAM-MYCS scores (fewer myths endorsed) than students (p<0.001). The factor structure of the CAM-MYCS was confirmed in the national sample and internal reliability was high (α=0.86). Inclusion of the CAM-MYCS alongside items assessing knowledge of actual cancer causes did not affect responses.ConclusionsThe CAM-MYCS tool is a reliable and valid tool assessing beliefs in mythical causes of cancer, and it can be used alongside items assessing known causes of cancer.
This article draws on findings from an extensive review of literature conducted as part of a wider project on disabled people's experience of violence, harassment and abuse. In addition to under‐reporting, disabled people tend to report incidents to a third party rather than to the police. Physical, procedural, and attitudinal barriers discourage disabled people from reporting to the criminal justice system. The relationship between the victim and the perpetrator can also throw up significant challenges to reporting. Disabled people may accept that these incidents are ‘part of everyday life’. There is an implementation gap in relation to current legislative tools that can facilitate a disabled person to seek redress.
Objectives The primary objective was to explore young people's risk appraisals of bowel cancer, including whether they had a coherent understanding of the protective effects of physical activity (PA). A secondary objective was to examine whether the illness risk representations (IRRs) framework could be used to understand beliefs underlying bowel cancer risk appraisals. Design Qualitative. Methods Framework analysis of semi‐structured interviews with 19 people aged 14–17 years. Results Participants judged their risk of getting bowel cancer as low. This was based on a lack of family history of cancer and their current lifestyle behaviours, which were viewed as having a protective effect, or because they planned on making change to their lifestyle in the future when disease risk became more relevant. Participants were not aware of, and struggled to understand, the link between PA and bowel cancer. They also lacked knowledge of the effects of, or treatments for, bowel cancer. Beliefs underlying judgements about the risk of bowel cancer fitted the IRR framework reasonably well. Conclusions The present research suggests that interventions designed to increase PA with a view to reducing the risk of bowel cancer should aim to make the future risk of bowel cancer feel more tangible, help young people to understand the full range of consequences, explain how and why preventative behaviours such as PA are effective in reducing risk, and emphasize that the typical late presentation of symptoms, and therefore investigation by health care services, reduces treatability. What is already known on this subject? Physical activity (PA) performed throughout the lifespan can have a protective effect on bowel cancer, but levels of PA are low among young people. Changing beliefs about the risk of getting bowel cancer may be a useful strategy in motivating PA. What does this study add? Increased understanding of how young people think about bowel cancer and the relationship between PA and cancer. Identification of strategies for increasing young adults’ appraisals of the likelihood and severity of bowel cancer. Evidence to support the validity of illness risk representations framework.
If you would like to write for this, or any other Emerald publication, then please use our Emerald for Authors service information about how to choose which publication to write for and submission guidelines are available for all. Please visit www.emeraldinsight.com/authors for more information. About Emerald www.emeraldinsight.comEmerald is a global publisher linking research and practice to the benefit of society. The company manages a portfolio of more than 290 journals and over 2,350 books and book series volumes, as well as providing an extensive range of online products and additional customer resources and services.Emerald is both COUNTER 4 and TRANSFER compliant. The organization is a partner of the Committee on Publication Ethics (COPE) and also works with Portico and the LOCKSS initiative for digital archive preservation. IntroductionThere are significant barriers to disabled people's full participation in political, civic and social activities (Williams et al, 2008). The murders of Brent Martin in Sunderland and Steven Hoskin in Cornwall, both of whom had learning disabilities, AbstractThe fear and experience of violence, harassment and abuse of those with learning disabilities are significant barriers to full social inclusion. The patchy evidence base and the confusing, and sometimes contradictory, array of policy and legislative instruments hamper efforts to tackle the issues. This article draws on the findings from an extensive review of literature looking into disabled people's experiences of targeted violence, harassment and abuse. The review found that people with learning disabilities and/ or mental health conditions are at higher risk, and experience greater levels, of violence, harassment and abuse, not only than non-disabled people but also than other disabled people. Situational vulnerabilities mean that the probability and experience of violence, harassment and abuse are due not simply to any inherent characteristics of those with learning disabilities. Under-reporting and lack of appropriate response and support from criminal justice agencies compromise access to justice. People with learning disabilities are also found to have a propensity to report to third parties instead of to criminal justice agencies. However, the evidence points to lack of joined-up working in various agencies, which hampers efforts at redress. There are particular concerns over a vacuum of responsibility as a result of confusion about the No Secrets guidance.
Despite laudable intentions and evidence of progress, significant barriers remain in relation to the access to and experiences of child and adolescent mental health services (CAMHS). This article draws on the findings of a literature review and reports a number of barriers and their impact on children and young people with learning disabilities. Children and young people with learning disabilities are at a disproportionate risk of experiencing mental health problems yet access and experience of CAMHS can be highly uneven. Families are often unclear about how to access mental health services and what services are available. Such information and knowledge-related barriers are particularly significant for certain minority ethnic groups. Barriers related to the CAMHS workforce mix, skills and staff attitudes can also mean that skills required for working with people with both mental health conditions and learning disabilities can be lacking. At a macro level, systems-related barriers include a lack of joint commissioning and planning, unclear care pathways, the lack of a single point of referral, difficult transition to adult mental health services and a lack of inappropriate services.
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