ObjectiveTo develop an Overall Pediatric Health Standard Set (OPH-SS) of outcome measures that captures what matters to young people and their families and recognising the biopsychosocial aspects of health for all children and adolescents regardless of health condition.DesignA modified Delphi process.SettingThe International Consortium for Health Outcomes Measurement convened an international Working Group (WG) comprised of 23 international experts from 12 countries in the field of paediatrics, family medicine, psychometrics as well as patient advisors. The WG participated in 11 video-conferences, through a modified Delphi process and 9 surveys between March 2018 and January 2020 consensus was reached on a final recommended health outcome standard set. By a literature review conducted in March 2018, 1136 articles were screened for clinician and patient-reported or proxy-reported outcomes. Further, 4315 clinical trials and 12 paediatric health surveys were scanned. Between November 2019 and January 2020, the final standard set was endorsed by a patient validation (n=270) and a health professional (n=51) survey.ResultsFrom a total of 63 identified outcomes, consensus was formed on a standard set of outcome measures that comprises 10 patient-reported outcomes, 5 clinician-reported measures, and 6 case-mix variables. The four developmental age-specific packages (ie, 0–5, 6–12, 13–17, 18–24 years) include either five or six measures with an average time for completion of 20 min.ConclusionsThe OPH-SS is a starting point to drive value-based paediatric healthcare delivery from a global perspective for enhancing child and adolescent physical health and psychosocial well-being.

Reseña

La atención en salud basada en el valor es un modelo de atención innovador que está dirigido a garantizar mejores resultados en la salud de la población atendida y un uso óptimo de los recursos. Para su implementación se propone una serie de principios que se analizan en el presente documento, análisis en el que se tienen en cuenta las características fundamentales, la factibilidad, las posibles barreras y las oportunidades que pueda generar este modelo. Los principios revisados son: unidades integradas de atención, medición de resultados en salud y costos, plataformas tecnológicas, modelos de pago centrados en la generación de valor, sistemas/redes integradas de atención y expansión geográfica. Además, se incluyen la atención centrada en el paciente y el trabajo en equipo como componentes fundamentales de este modelo.

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