Introdução: O câncer acarreta alterações na vida dos pacientes e de seus familiares, e sua família exerce significativa influência sobre a saúde, o bem-estar de cada um de seus membros e as enfermidades que os atingem. Objetivo: Identificar na literatura as produções científicas sobre a repercussão na família quando um de seus membros adulto adoece por câncer. Métodos: Estudo de revisão narrativa da literatura, realizado em junho de 2012, nas bases de dados da Literatura Latino-Americana e do Caribe em Ciências da Saúde (LILACS); Base de Dados de Enfermagem (BDENF) e Medical Literature Analysis and Retrieval System (MEDLINE), a partir dos descritores "família" or "relações familiares" and "neoplasias". O corpus do estudo se constituiu de 16 artigos. Resultados: A repercussão na família de ter um de seus membros adultos com câncer inicia-se com o diagnóstico da doença, causando sentimentos diversos, o que interfere de forma positiva ou negativa nas relações familiares. Percebeu-se também que, de modo geral, após o diagnóstico de câncer, a união e o relacionamento entre os membros da família se tornaram mais consolidados, constituindo-se em fonte de apoio, segurança e estabilidade emocional. Conclusão: As repercussões negativas, como os sentimentos advindos da confirmação do diagnóstico, se configuram como possíveis causas para a falta de comunicação entre os membros da família. As repercussões positivas, tais como a consolidação do relacionamento familiar e o apoio entre seus membros podem contribuir para a elaboração de estratégias, na tentativa de reorganizar e/ou manter a estrutura familiar.
To report the experience of rural families when having a father/husband with prostate cancer illness. Methods: qualitative research, conducted at the residence of four rural families with nine subjects. A semi-structured interview was used, and thematic categories were established by the data analysis. Results: men with cancer were between 66 and 68 years old, knowing the diagnosis at least four years ago. Respondents family members were wives or children, aged between 30 and 69 years old. Families worked on agriculture and livestock. The nominated category A prostate cancer in our life is formed by the sub-categories: discovery of the diagnosis; family support; changes resulting from illness and difficulties faced during treatment. Conclusion: the rural family experience is full of constant division of tasks between the care for the father/husband and work activities, changes in marital life, sadness, distress and hopes about an uncertain future.
Background/context The Hospice in North Hampshire had offered support and care to MND patients but in an unstructured way. Close working between the Palliative Medicine and Neurology Consultants led to a recognition that both early and advanced care could be improved if services were to work more closely together. Aim The aim was to set up and run a montly multi-disciplinary clinic for people with MND in the Hospice, allowing access to all members of the multi-disciplinary team (neurologist, consultant in palliative medicine, care centre co-ordinator, hospice at home team, social worker, physiotherapist, OT, speech and language therapist, Association Visitors) via one clinic. The clinic link with the MNDA would improve access to information about services. The outpatient hospice setting allows informal support for pts and carers from Assoc Visitors. Outcomes To improve the patient and carer experience. To ensure access to hospice services early in diagnosis. To improve both peer and carer support through joint working with the MNDA. To develop a specialist skill base with opportunities for support and training of other professionals. To develop patient professional relationships which allow easy transition in the end stages of illness. Application to hospice practice Many centres across the country run a multidisciplinary MND clinic but traditionally in the hospital settling. Evidence is good for improvement in patient care from a hospital model of service delivery model. Hospices have many advantages with their experience in coordinating care and community focus. The early links with the Hospice allow continuity of care throughout the patient journey.
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