Most studies of parenting children with Down syndrome (DS) have been conducted in industrialized countries. They suggest that sensitive communication on the part of professionals, and social support, can lead to acceptance and positive adjustments in the family. This study examined the impact of a diagnosis of DS on Ecuadorian families, in particular at how the diagnosis had been communicated and received, as well as the feelings and experiences which followed. Despite considerable progress in recent years, Ecuador is still marked by discriminatory attitudes which affect children with disabilities and their families, and by the persistence of widespread poverty. This qualitative study, conducted in Cuenca, Ecuador’s third largest city, is based on a focus group discussion and four in-depth interviews with Ecuadorian parents of DS children attending a specialist center in the city. The study shows that, reflecting the effects of status differences and lack of appropriate training, professionals rarely communicate a DS diagnosis in an appropriate manner. Further, it is shown that lack of social support, and the widespread stigmatization confronting children with DS and their families, hinder development of positive and empowering adjustments that would best serve the child’s and the family’s interest.
A (des)educação contraceptiva dos jovens universitários Contraceptive (mis)education among young adults in Higher Education La (des)educación contraceptiva de jóvenes universitarios
There are, currently, many appeals for the adoption of more humane health care and are, thus, based on the "Caring" paradigm. One of the ways pointed out is the appreciation of the understanding of human vulnerability, especially when it is associated with the disease. Therefore, this study consists of understanding how the representation of human vulnerability of health care providers influences their practice of caring. The Human Vulnerability Representation Scale (HVRS) and the adapted Caring Attributes Scale (CAS) were applied to a sample of 1213 in health caregivers (doctors, nurses, medical students, and nursing students). Descriptive statistics (frequencies, measures of central tendency) and inferential analysis were performed (non-parametric tests, Spearman correlation coefficient). The results confirm a positive relationship between the two variables in the study because the caregivers with higher averages in the human vulnerability representation scale have higher averages in the scale of the caring attributes. That is, the greater the representation of human vulnerability, the greater the value of caring. This reality holds true for all dimensions of the scales. The experience of vulnerability allows the professional to better understand the patient, facilitates the development of empathy, and rouses caregivers to the need of improving the quality of care. It was concluded that the representation of human vulnerability may be the instrument for adopting the "Caring" paradigm. Thus, it would be important, in the near future, to develop interventions related to vulnerability capable of transforming future caregivers into humanization vehicles.
Objectives: in this study, two research tools were validated to study the impact of technological influence on health professionals' care practice. Methods: the following methodological steps were taken: bibliographic review, selection of the scales, translation and cultural adaptation and analysis of psychometric properties. Results: the psychometric properties of the scale were assessed based on its application to a sample of 341 individuals (nurses, physicians, final-year nursing and medical students). The validity, reliability and internal consistency were tested. Two scales were found: Caring Attributes Questionnaire (adapted) with a Cronbach's Alpha coefficient of 0.647 and the Technological Influence Questionnaire (adapted) with an Alpha coefficient of 0.777. Conclusions: the scales are easy to apply and reveal reliable psychometric properties, an additional quality as they permit generalized studies on a theme as important as the impact of technological influence in health care.
Objectives: This study's objective consisted of the construction and validation of a scale to identify the representation of human vulnerability in the health field. Method: its development was divided into three steps: a bibliographic review and exploratory interviews were conducted to establish the items and their subsequent aggregation into dimensions; evaluation by an expert committee; and pre-test. The scale's psychometric properties were evaluated based on its application to a sample of individuals (nurses, physicians, and senior nursing and medical undergraduate students). Validity, reliability, and internal consistency tests were performed.Results: the scale obtained consists of four dimensions (knowledge of intrinsic vulnerability, knowledge of extrinsic vulnerability, experience of vulnerability, and perception of vulnerability in patients). The scale presents good internal consistency with high Cronbach's alpha coefficient values. Conclusion: The Representation of Human Vulnerability in Health Workers Scale is easy to apply and presents reliable psychometric properties. It is an innovative tool that can be used in the development of studies addressing human vulnerability. La representación de la vulnerabilidad humana en cuidadores de la saludconstrucción y validación de una escalaObjetivos: El objetivo de este estudio consistió en la construcción y validación de una escala para la "Representación de la vulnerabilidad humana en la salud". Método: Se realizaron los siguientes pasos: Revisión bibliográfica y entrevistas exploratorias que llevaron a la formulación de Ítems y posterior agregación en dimensiones; evaluación por un comité de especialistas y un pre examen. Las propiedades psicométricas de la escala fueron evaluadas a partir de su aplicación a una muestra de 342 individuos: enfermeros, médicos y estudiantes (estos últimos finalistas en enfermería y medicina). Fueron hechos estudios de validez, de fiabilidad y consistencia interna. Resultados: Se obtuvo una escala constituida por cuatro dimensiones (Conocimiento de la vulnerabilidad Intrínseco, conocimiento de la Vulnerabilidad extrínseco, experiencia de la vulnerabilidad y percepción de situaciones de vulnerabilidad en los pacientes) con buena consistencia interna traducidas con valores de coeficiente "Alpha de Cronbach" muy elevados. Conclusiones: La "Escala de Representación de la Vulnerabilidad Humana" demostró ser de fácil aplicación y reveló propiedades psicométricas fiables, que la presentan como un instrumento innovador que permite hacer estudios generalizados sobre un tema tan importante como es el de la vulnerabilidad humana.Descriptores: Escalas; Validez de las Pruebas; Vulnerabilidad; Salud.Introduction nature of some words or expressions causes their meaning to change according to the situation or circumstance in which we employ them. Thus, the term "vulnerability" frequently emerges in bioethical texts to refer to the imperious need to protect the most vulnerable in the face of scientific experimentation. In the fields of public ...
<p>Objetivo: identificar necessidades de formação dos enfermeiros em Educação em Saúde para a criança/jovem/família. Método: pesquisa quantitativa aplicada a uma amostra de 311 enfermeiros que realizavam Educação em Saúde para a criança/jovem/família em dois centros hospitalares e dois agrupamentos de atenção primária da província de Trás-os-Montes e Alto Douro no segundo semestre de 2018. Resultados: entre os inquiridos, 84,9% (n=264) não seguia nenhum modelo/teoria de Educação em Saúde; 66,2% (n=206) não frequentou nenhuma formação no âmbito da Educação em Saúde nos últimos cinco anos; 98,7% (n=307) considerou que a formação em Educação em Saúde é importante para o seu desenvolvimento profissional; e 93,6% (n=291) referiu necessidade de formação específica no âmbito da Educação em Saúde, nomeadamente em “técnicas de comunicação” (50,5%; n=157) e “estratégias técnico-pedagógicas” (50,5%; n=157). Conclusão: os enfermeiros sentiam necessidade de formação em modelos/teorias, técnicas de comunicação e estratégias técnico-pedagógicas de intervenção na Educação em Saúde.</p><p><br />Descritores: Promoção da Saúde. Educação em Saúde. Enfermagem. Saúde da Criança. Saúde do Adolescente.</p><p> </p>
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