The prevalence and severity of caries in these Native American students appear to be substantially higher than in their non-Indian peers residing in the same communities. Further study is needed to identify factors contributing to these demonstrated differences in caries experience.
Research investigators require guidance on how to be respectful of culture and protect human participants in research projects, while maintaining flexibility to conduct reliable research processes. Unfortunately, historical mistrust has grown as a result of research goals that are not driven by tribal community needs, and recurrent cases of misunderstanding and disrespect for Native cultures. Furthermore, confidentiality is often not upheld. As a result, there is an urgent need to improve relationships between Native communities and researchers. This presentation will provide examples and discuss how researchers should work with the tribal review process and the Indian Health Services (IHS) Institutional Review Boards (IRB). Tribes need to protect themselves from research abuses by asserting their rights under the tribal regulatory process for research review. First and foremost, the researchers should demonstrate to the tribal communities involved the reasons and the benefits of the research project to the communities despite the potential risks. The researcher will increase trust from the tribal community by the following guidelines: 1) increase level of cultural sensitivity; 2) emphasize ethics standards; and 3) on-going outreach to tribal communities. Neither the tribal nor IHS IRB wants to be a hindrance to research that benefits tribal communities. This presentation will demonstrate how research will be improved if it is vetted through a tribal and/or IHS IRB process. The presenters will aid researchers to understand and remedy areas where tribes may have particular concerns and interests due to past research negligence. These areas are related to research purpose and need, data collection, risks to tribes, and benefits to tribal communities and future generations. These tips will enable researchers to prepare in advance for tribal community concerns and IRB proposals in Indian Country.
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