Introduction. Rasmussen's Syndrome (RE), is a rare type of chronic focal encephalitis (CFE) of unexplained etiology and progressive course. It is characterized by resistant to treatment epileptic seizures. Mainly, these are epilepsy partialis continua (EPC) seizures. In the course of the disease, regress of cognitive function and progressive neurological deficits follow, primarily, hemiparesis. Quality of life examination is an expression of a holistic approach towards the patient. These studies are really important in the chronic diseases. Apart from the time of survival, they may be the dependent variable in the models of, treatment effectiveness of and care assessment. Case Report. The case study concerns a 15-year-old sick girl, whose neurological condition, has been steadily deteriorating-aphasia and dementia dominate, hemiparesis is low. The assessment of the quality of the patient's life was assessed by the pediatric quality of life questionnaire (PedsQL 4.0). Discussion. Subjective assessment of the quality of life assessed by the patient, is a source of information, which is often different from the assessment made by the girl's mother. Furthermore, subjective evaluation suggests for existence of patient's needs that are imperceptible, which require professional care and assistance outside the hospital environment. Conclusions. The patient with RE is characterized by complexity and a multitude of health problems. According to the assessment made by the girl the quality of her life is lower compared to the answers given by the mother.
Epilepsy is a neurological disorder characterized by the occurrence of seizures of distinct nature. At the developmental age it occurs in 0.5% of people. Diagnostic and therapeutic process is complex. In the treatment, pharmacological, surgical, and dietetic methods are used. In the handling of a child affected by epilepsy, we should take into account the impact of the disease on the quality of patient's life and on that of their families'. The aim of the work is to present the current clinical knowledge on the subject of epilepsy at the age of development and the problems, which the children and their parents must face.
Introduction. Epilepsy belongs to the most frequently occurring nervous conditions. Depending on the course of the disease and on the support provided to the child from his/her closest family, the child's physical, mental and social functioning differs. Aim. The aim of this paper is the physical functioning of epileptic children in the opinion of their parents. Material and Methods. The study was performed on 94 children with diagnosed epilepsy, treated in the Department of Infectious Diseases and Child Neurology, Poznan University of Medical Sciences. A proprietary polling questionnaire as well as a parent-targeted QOLCE (Quality of Life in Childhood Epilepsy Questionnaire) served as the measure; consequently, parents or carers to the children within the study were also included as participants. Results. The studied children were rarely left unmanned during play, and they never spent a night out. In the assessment of the physical functioning performed by fathers and mothers, a statistically significant difference (p≤0.05) was observed; children function better in this section according to mothers. The parents'/carers' education as well as the child's educational facility is a statistically significant (p≤0.05) factor influencing physical functioning of a child. No significant difference was noted between the child's area of residence (p≥0.05) and age (p≥0.05) and his/her physical functioning. Conclusions. The majority of the studied children attended a school or a kindergarten. Epilepsy significantly limits children when it comes to their physical functioning. Among factors influencing the level of a child's physical functioning, parents' education and child's educational facility present themselves as the most relevant. (JNNN 2015; 4(4):146-151)
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