The structuring of daytime activities for older people with intellectual disabilities (ID) is often at odds with the views or needs of the people involved with these activities. The aim of this study was to understand the perceptions of people with ID with respect to retirement—that is, the mandatory transition from attending day centers in two Scottish localities. Semi‐structured interviews were conducted with 16 older adults and the resultant transcripts subjected to interpretive phenomenological analysis. Five themes emerged from the analysis: the importance of activity, the day center as a social hub, confusion concerning retirement, desire for continuity, and the value of independence. The older adults placed great value on participation in daytime activity and on attendance at local authority‐run day centers. They wished to remain active well into old age and wished to contribute to their local communities. Disconcertingly, the participants highlighted the difficulties with their understanding of “retirement” and those who demonstrated a level of understanding felt that they had a disconnected role in the process. The study revealed some important implications for service provision and development. The authors suggest that the provision of daytime activity for older people with ID should be scrutinized closely with respect to what people do as retirees and how they prepare for a change in lifestyle.
Accessible summary There is little information about pregnancy for people with learning disabilities. This means it is hard to make good choices. The pregnancy support pack has easy to read information about pregnancy and birth. Women with a learning disability told us the pack helped them to understand information their midwife gave them. Midwives told us the pack helped them to work better with women with a learning disability. SummaryThe literature agrees that an increasing number of people who have a learning disability have children. This group of parents are expected to fit into existing health services and are disadvantaged when presented with complex information regarding pregnancy and birth. There is a dearth of information in relation to accessible information on antenatal care and consent to medical procedures for parents with learning disabilities, despite this being a recommendation by best practice guidelines on working with parents who have a learning disability (SCLD, 2009; Department of Health and the Department of Education and Skills (DoH DfES) 2007; Department of Health 2009). This project aims to redress this balance by developing accessible resources for a typical pregnancy. Thematic analysis is used to evaluate the accessibility and acceptability of the resources from a professional and service user perspective, and identified themes are discussed. Results suggest that adapted resources are helpful in supporting parents with learning disabilities to access essential information about their pregnancy and to make informed decisions about their care. They support the interaction between parents and maternity services, resulting in a more effective and efficient care process. Implications for further research and developments are discussed.
The federal budgeting process affects a wide range of people who work in public health, including those who work for government at local, state, and federal levels; those who work with government; those who operate government-funded programs; and those who receive program services. However, many people who are affected by the federal budget are not aware of or do not understand how it is appropriated or executed. This commentary is intended to give non-financial experts an overview of the federal budget process to address public health emergencies. Using CDC as an example, we provide: (1) a brief overview of the annual budget formulation and appropriation process; (2) a description of execution and implementation of the federal budget; and (3) an overview of emergency supplemental appropriations, using as examples the 2009 H1N1 influenza pandemic, the 2014-15 Ebola outbreak, and the 2016 Zika epidemic. Public health emergencies require rapid coordinated responses among Congress, government agencies, partners, and sometimes foreign, state, and local governments. It is important to have an understanding of the appropriation process, including supplemental appropriations that might come into play during public health emergencies, as well as the constraints under which Congress and federal agencies operate throughout the federal budget formulation process and execution.
Computational approaches to archives present archivists and users with new ways of engaging with records and their provenance. Such approaches are particularly useful for scientific archives due to the collective and collaborative nature of modern scientific knowledge production. This article explores computational approaches to digitized fonds of scientists involved in the transdisciplinary scientific movement cybernetics through the Cybernetics Thought Collective: A History of Science and Technology Portal Project as a means to reveal the ways cyberneticians have developed concepts and debated ideas through the creation and exchange of correspondence and other records. The project has experimented with machine-learning and natural-language-processing tools to generate data from the materials in an effort to reveal connections between the cyberneticians and their correspondence. Cybernetics seeks to understand the human condition through experiments with machines, and, in a cybernetically inspired sense, so too do archivists seek to understand their archives through experiments with machines. Such explorations are important for documenting scientific thought collectives like cybernetics in a digital age.
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