Demelza Hospice Care for Children, Sittingbourne, Kent, UKThe United Kingdom is one of the most prominent destination countries for people to be trafficked to in Europe. An estimated 20 000 people are trafficked into (and throughout) the UK every year, with the majority of victims coming from, arguably, the poorest countries. This presentation outlines the case of a baby (aged two days) who was referred to a children’s hospice for end of life care. Within the context of the direct work, it became apparent that the mother had been trafficked into the UK and had experienced periods of homelessness. The children’s hospice social work team worked intensively to seek support for this mother, but due to high service demand, and the mother’s questionable residency status, no statutory organisation was willing to engage. The NSPCC helpline recommended the Salvation Army, a Christian church and registered charity and this partner charity offered an assessment visit by their Anti-Human Trafficking Team’s First Responder Co-ordinator and plans were subsequently put in place for the team to take on the supporting role after the baby’s death. As well as focusing on safeguarding this extremely vulnerable family unit, it was essential that this mother had the opportunity to bond with her baby and to, albeit briefly, positively experience motherhood. The baby died peacefully, aged seven weeks. Pre-death planning had clarified the family’s customs and rituals, which dictated that the parents did not attend the funeral and therefore, two members of the children’s hospice team, together with two representatives from the Salvation Army were present, as a mark of respect. A year on, the mother continues to receive concerted support from the partnership charity, enabling her to preserve her dignity, reflect, recover and rebuild her life.
This article explores setting up a research group and outlines how we work together. The goal of the research group is to work collaboratively to conduct research on aspects of life for young disabled LGBT+ people that we think need more research. We hope to outline the aim of the group and what we want to achieve. It will also discuss our research principles and how we have conducted research together. We hope that the article provides insight on how to set up collaborative groups, how to work together, and what such groups can achieve. This article has been written collaboratively and this is reflected throughout.
Novel data sources and analyses of statutory data are highlighting challenges and opportunities for the children's palliative care sector. Such services have a growing evidence base for their work which includes some of the most robust demographic data to date (Fraser et al . 2011, 2013). Articulating how to channel the knowledge gained into effective service developments is a key challenge for children's hospices.One example of using data to challenge existing thinking and evolve evidence based services concerns post death care. Child Death Overview Processes [CDOP] facilitate annual reporting of child mortality. Of the child deaths reviewed in 2014, over 80% had ongoing health problems and 70% had a known life-limiting or life-threatening condition (DfE 2014). Children's hospices provide end of life care. Post death care may also be offered, providing an alternative to mortuary or funeral home for the child's body and facilitating immediate bereavement support forextended family. Not all children's hospices provide this service. Of those that do, practice varies with respect to service provision for families whose child has not accessed the hospice in life and who may not fulfil hospice access criteria.Not extending the service to such families may reflect anxiety among children's hospices that their bereavement services will be overwhelmed by numbers of families requiring the service. This paper seeks to address those concerns and contextualise appropriate service development utilising local and national data sources.Local CDOP data are reviewed for a number of children's hospices and compared to bed availability for end of life care and post death care services, alongside a review of the evidence of the impact of provision or not of provision of such services upon family grieving and morbidity.
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Objective: To determine characteristics, precipitating circumstances, clinical care, outcome and disposition of patients brought to the ED under section 351 (s351, police detention and transport) powers of the Mental Health Act 2014 (Vic) (MHAV). Methods: This is an observational cohort study conducted in two metropolitan teaching hospitals in Victoria. Participants were adult patients brought to ED under s351 of the MHAV. Data collected included demographics, event circumstances, pre-hospital and ED interventions and outcome. Analyses are descriptive. Results: The present study included 438 patient encounters. Median age was 34 years. In 84% of encounters (368/438) patients were co-transported with ambulance. The most common primary reason for detainment was suicide risk/intent (296/438, 67.6%) followed by abnormal behaviour without threat to self or others (92/438, 21%). In ED, parenteral sedation was administered in 11% (48/438). Physical restraint was applied in 17.6% (77/438). Psychiatric admission was required in 23.5% (103/438). In 63 cases, psychiatric admission was involuntary (14.4%). Most patients (297/438, 67.8%) were discharged home. A subset of patients had recurrent s351 presentations. Eighteen (5.6%) patients accounted for 22% (96/438) of all events. Conclusion: Most patients brought to ED under s351 of the MHAV had expressed intention to self-harm, did not require medical intervention and were discharged home. It could be questioned whether the current application of s351 is consistent with the least restrictive principles of the MHAV, especially as there is no apparent monitoring or reporting of the use of these powers. There were a concerning number of patients with multiple s351 events over a short period.
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