A Young Disabled LGBT+ Researchers Group: Working Collaboratively to Explore the Lives of Young Autistic LGBT+ Persons

While stakeholders provide invaluable perspectives about music therapy, particularly through the lens of their expertise as participants in music therapy encounters, their perspectives are rarely amplified in the context of full participation in research teams. In support of stakeholder participation in music therapy research, this article introduces and explores ethical considerations related to co-authorship. These ethical considerations are approached in three ways: (1) describing how co-authorship has been undertaken with music therapy stakeholders, specifically disabled children and adults, in a range of contexts, (2) Identifying ethical considerations related to our team’s own research project (Devlin, K., Johnston, M., & Johnston, C. [2024]. Making mistakes together: therapy participant, parent, and therapist perspectives on music therapy in two different settings. Music Therapy Perspectives) with two coauthors who are also stakeholders, and (3) providing guidelines for music therapists interested in coauthoring research with stakeholders. In doing so, the importance of co-authorship as an accessible, equitable research practice is emphasized. Plain language abstract This article is about planning, doing, and writing research with people who are usually studied in music therapy research. We call this co-research. We talk about: How to keep people safe How to make decisions together How to work and write as a team If we should use our real names

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Telling Disabled and Autistic Sexuality Stories: Reflecting upon the Current Research Landscape and Possible Future Developments

Toft

2023

Sexes

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Developments in the study of sexuality in the lives of disabled people have been relatively slow, as the spectre of a medicalised model continues to dominate most debates and invalidate any form of sexual identity. The social model of disability has enabled the amplification of voices that have been previously silenced; however, progress has stalled. Within autism studies, however, the rise of neurodiversity studies coupled with intersectionality, has presented an opportunity to explore sexualities in terms of difference rather than deficiency, therefore bypassing deficit models which have dominated any study of non-heterosexual lives. Such deficit models have focussed upon discovering what it is about autism that leads autistic people to think they are non-heterosexual, often resulting in a lack of support for young LGBT+ people as sexuality is dismissed as a result of autism. Reflecting upon findings from my own ongoing work alongside emerging social research, this article explores important developments and potential future directions. This will highlight the progress made and the barriers remaining. Using a sociological approach and a framework inspired by Plummer, which focusses upon the importance of sexual stories, the article will show that much needs to be done. The diversity of goals and multiplicity of stories means that disabled and autistic sexuality stories have not been accepted into the public consciousness.

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A Young Disabled LGBT+ Researchers Group: Working Collaboratively to Explore the Lives of Young Autistic LGBT+ Persons

Cited by 3 publications

References 17 publications

‘These Made-Up Things Mean Nothing to Me’: Exploring the Intersection of Autism and Bisexuality in the Lives of Young People

‘These Made-Up Things Mean Nothing to Me’: Exploring the Intersection of Autism and Bisexuality in the Lives of Young People

Ethical Considerations in Co-Authoring Research with Music Therapy Stakeholders

Telling Disabled and Autistic Sexuality Stories: Reflecting upon the Current Research Landscape and Possible Future Developments

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