Este estudo avaliou as ações de mulheres negras da zona leste de São Paulo e suas influências, na formulação da política pública Triagem Neonatal para anemia falciforme em São Paulo. Para tal, foi realizada uma pesquisa avaliativa à luz do referencial de Donabedian. A coleta foi realizada no acervo documental da Associação Afro-Brasileira Ogban e Associação de Anemia Falciforme do Estado de São Paulo, localizadas em São Paulo, entre 1994 e 2001. Para análise dos dados, optou-se pela análise temática. Foram localizados 98 documentos, descartando repetidos, sem data e ilegíveis, restando 58. Destes, foram selecionados 21. Os documentos foram classificados por número e data dos eventos e extraída a informação principal. Os documentos analisados mostraram que o empreendedorismo social das ONGs, em parceria com o poder público, produziu processo e resultado com a inclusão da anemia falciforme na triagem neonatal por meio da Portaria GM/MS n.º 822/2001.
Objective: To estimate the prevalence of gestational complications and perinatal outcomes in women with and without hemoglobinopathies.Method: This is a cross-sectional study with a quantitative approach, performed from 110 medical records of pregnant women who underwent prenatal, childbirth, postpartum and perinatal care in a gynecology and obstetrics service of the University Hospital at the Federal University of Mato Grosso do Sul, Brazil, between 2010 and2011. Results: Gestational complications in women with and without hemoglobinopathies in the variables: obstetric (preterm labor, preeclampsia, ruptured membranes for more than six hours (17.06 times; 12.19 times; 4.27 times respectively); clinical: urinary tract infection, heart failure, severe anemia (2.97 times; 12.6 times; 9.75 times, respectively), and perinatal: cesarean delivery, neonatal infection; the newborn in the neonatal intensive care unit; fetal death, stillbirth (1.57 times; 39.00 times; 12.19 times; 12.9 times; 9.75 times; respectively) were higher in the presence of hemoglobinopathies.
Conclusion:The pregnancy outcomes of women with hemoglobinopathies, perinatal and their newborns showed a higher prevalence of complications than women without this change.
Pregnancy Complications and Perinatal Outcomes of Women with Hemoglobinopathies
ORIGINAL
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