The study focuses on siblings of children with disabilities (CD) in order to investigate: (a) basic components of the sibling personality (self-concept, selfesteem, feelings of loneliness, main needs, nature of anxiety, and attitudes), (b) the representation of family functioning and parental figures, and of social environment, and (c) sibling relationship. The sample consisted of 20 families raising a CD and 20 families raising children without disabilities (CWD). The total number of participants was 151 individuals (80 parents and 71 children). The measures used were the following: (a) self-report measures: (1) Self-concept Scale for Children Lipsitt There were statistically significant differences in the way they experienced sibling rivalry, maternal figures, and social environment. The study suggests that siblings of CD react in three ways towards their brother/sister: (a) they are protective, (b) distanced, and (c) present infantile behaviour.
The study focuses on families raising a child with cerebral palsy to investigate family strengths and their association with family and parent demographic characteristics in Greece and Italy. Participants were 120 parents raising a biological child with cerebral palsy. Data collection used a self-report questionnaire and the Family Strengths Inventory. According to the findings, families share a high sense of family strengths, which is mainly represented in the high sense of ‘pride’ and ‘accord’. In addition, demographic characteristics seem to be important predictors of well-being and strengthen parents and families raising a child with cerebral palsy.
Background: Cerebral palsy (CP) is a serious disorder with an important impact not only on the affected person but also on parents and the entire family. CP children often undergo surgery with long stay hospitalization.
Aim: The aim of the study was to highlight the impact of orthopedic surgery on parents of children affected by cerebral palsy in Greece.
Materials and methods: The semi-structured interviews of 80 parents (40 fathers and 40 mothers) of nuclear and intact families were collected. All parents were of Greek nationality, belonged to the middle socio-economic class and had at least one child affected by CP candidate to orthopedic surgery.
Results: The majority of parents’ perception was that CP is a condition requiring special education, need for specialized services and a medical problem that affects the entire family. Their expectations after orthopedic surgery were focused mainly on child’s healing and hope to have a “healthy” child, while expectations from future surgery were focused on improving child’s quality of life, movement and gait.
Conclusions: Parents of CP children have different perceptions of the clinical condition and a variety of expectations about orthopedic surgery and its outcomes.
Children with cerebral palsy (CP) are often hospitalized and have long stays, as they need surgeries and operations. The perioperative period can be perplexing for the people involved. This study investigates parents’ perceptions of CP and expectations of operation and surgery outcomes in Greece and in Italy during this crucial perioperative period. A total of 120 married parents participated in the study: 60 mothers and 60 fathers who had a biological child with CP. All children had operable CP and were under continuous medical/surgical treatment. Semi-structured interviews were used for data collection. Parents expressed diverse perceptions of CP whilst they had almost the same perceptions of it in both countries. They mainly represented CP as a medical problem affecting the whole family, including the child. Parent's expectations on orthopaedic surgeries concerned improving the child's quality of life, the level of its functional impairment and the rehabilitation of its movement and gait. There were no statistically significant differences as regards country of origin and parents’ gender on perceptions of CP and expectations of operation and surgery outcomes. This study suggests that parents outline a variety of perceptions of the condition of CP and of expectations concerning operation and surgery outcomes.
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